Related references
Note: Only part of the references are listed.Patients' Quality of Life is Severely Impacted by Mere Discussions without Realization of the Imperative Centralization of Specialist Surgery and Subsequent After-Care
Eberhard Schmiedeke et al.
EUROPEAN JOURNAL OF PEDIATRIC SURGERY (2023)
Development and validation of a condition-specific quality of life instrument for adults with esophageal atresia: the SQEA questionnaire
Chantal A. ten Kate et al.
DISEASES OF THE ESOPHAGUS (2023)
Patient-reported outcome measures in pediatric surgery-A systematic review
Anne-Sophie Besner et al.
JOURNAL OF PEDIATRIC SURGERY (2022)
The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content Validity
Siqi Li et al.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH (2022)
Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia
Anna Rozensztrauch et al.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH (2022)
Psychometric Performance of a Condition-Specific Quality-of-Life Instrument for Dutch Children Born with Esophageal Atresia
Chantal A. ten Kate et al.
CHILDREN-BASEL (2022)
Quality of life after esophageal replacement in children
Gabriele Gallo et al.
JOURNAL OF PEDIATRIC SURGERY (2021)
Parent-Reported Feeding Difficulties among Children Born with Esophageal Atresia: Prevalence and Early Risk Factors
Sofie Orno Ax et al.
EUROPEAN JOURNAL OF PEDIATRIC SURGERY (2021)
Patient-driven healthcare recommendations for adults with esophageal atresia and their families
Chantal A. ten Kate et al.
JOURNAL OF PEDIATRIC SURGERY (2021)
Risk Factors of Early Mortality and Morbidity in Esophageal Atresia with Distal Tracheoesophageal Fistula: A Population-Based Cohort Study
Rony Sfeir et al.
JOURNAL OF PEDIATRICS (2021)
Longitudinal Health Status and Quality of Life After Esophageal Atresia Repair
Chantal A. Ten Kate et al.
JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION (2021)
A thematic analysis exploring the psychological well-being of adults born with esophageal atresia
Caitlin Rabone et al.
JOURNAL OF PSYCHOSOMATIC RESEARCH (2021)
Mortality from gastrointestinal congenital anomalies at 264 hospitals in 74 low-income, middle-income, and high-income countries: a multicentre, international, prospective cohort study
Naomi J. Wright et al.
LANCET (2021)
Similarities and Differences in Health-Related Quality-of-Life Concepts Between the East and the West: A Qualitative Analysis of the Content of Health-Related Quality-of-Life Measures
Zhuxin Mao et al.
VALUE IN HEALTH REGIONAL ISSUES (2021)
Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal Atresia
Tutku Soyer et al.
TURKISH JOURNAL OF GASTROENTEROLOGY (2021)
ERNICA Consensus Conference on the Management of Patients with Esophageal Atresia and Tracheoesophageal Fistula: Follow-up and Framework
Carmen Dingemann et al.
EUROPEAN JOURNAL OF PEDIATRIC SURGERY (2020)
Impact of Completing CLEFT-Q Scales That Ask About Appearance on Children and Young Adults: An International Study
Anne F. Klassen et al.
CLEFT PALATE-CRANIOFACIAL JOURNAL (2020)
Are the instruments for quality of life assessment comparable between cultures? No
Swagata Tripathy et al.
INTENSIVE CARE MEDICINE (2020)
Oesophageal atresia: The growth gap
Isabelle Traini et al.
WORLD JOURNAL OF GASTROENTEROLOGY (2020)
Health-Related Quality of Life in Patients after Repair of Esophageal Atresia: A Review of Current Literature
Michaela Dellenmark-Blom et al.
EUROPEAN JOURNAL OF PEDIATRIC SURGERY (2020)
Care recommendations for the respiratory complications of esophageal atresia-tracheoesophageal fistula
Anastassios C. Koumbourlis et al.
PEDIATRIC PULMONOLOGY (2020)
Traumatic stress, mental health, and quality of life in adolescents with esophageal atresia
A. Mikkelsen et al.
JOURNAL OF PEDIATRIC SURGERY (2020)
Risk factors for refractory anastomotic strictures after oesophageal atresia repair: a multicentre study
Floor W. T. Vergouwe et al.
ARCHIVES OF DISEASE IN CHILDHOOD (2019)
Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort
Sofie Flieder et al.
EUROPEAN JOURNAL OF PEDIATRIC SURGERY (2019)
Translation, Cross-Cultural Adaptation and Linguistic Validation of the FACE-Q Questionnaire for Brazilian Portuguese
Adriana Margarita Buelvas Bustillo et al.
AESTHETIC PLASTIC SURGERY (2019)
Oesophageal atresia
Marinde van Lennep et al.
NATURE REVIEWS DISEASE PRIMERS (2019)
Evaluation of Gastroesophageal Reflux in Children Born With Esophageal Atresia Using pH and Impedance Monitoring
Floor W. T. Vergouwe et al.
JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION (2019)
Long-term Quality of Life in Neonatal Surgical Disease
Ruchi Amin et al.
ANNALS OF SURGERY (2018)
Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries
Anne F. Klassen et al.
CANADIAN MEDICAL ASSOCIATION JOURNAL (2018)
The Esophageal-Atresia-Quality-of-life Questionnaires: Feasibility, Validity and Reliability in Sweden and Germany
Michaela Dellenmark-Blom et al.
JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION (2018)
A patient led, international study of long term outcomes of esophageal atresia: EAT 1
Evelyn Svoboda et al.
JOURNAL OF PEDIATRIC SURGERY (2018)
Translation and cultural adaptation of the CLEFT-Q into Arabic, Dutch, Hindi, Swedish, and Turkish
Elena Tsangaris et al.
EUROPEAN JOURNAL OF PLASTIC SURGERY (2018)
Decentralized Rather than Centralized Pediatric Surgery Care in Germany
Andrea Schmedding et al.
EUROPEAN JOURNAL OF PEDIATRIC SURGERY (2017)
Translation and cultural adaptation of the CLEFT-Q for use in Colombia, Chile, and Spain
Elena Tsangaris et al.
HEALTH AND QUALITY OF LIFE OUTCOMES (2017)
Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Clinical Trials: An ISPOR COA Emerging Good Practices Task Force Report
Katy Benjamin et al.
VALUE IN HEALTH (2017)
Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia
M. Dellenmark-Blom et al.
DISEASES OF THE ESOPHAGUS (2017)
Dysphagia in children with repaired oesophageal atresia
Catelijne H. Coppens et al.
EUROPEAN JOURNAL OF PEDIATRICS (2016)
ESPGHAN-NASPGHAN Guidelines for the Evaluation and Treatment of Gastrointestinal and Nutritional Complications in Children With Esophageal Atresia-Tracheoesophageal Fistula
Usha Krishnan et al.
JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION (2016)
Health-related quality of life experiences among children and adolescents born with esophageal atresia: Development of a condition-specific questionnaire for pediatric patients
Michaela Dellenmark-Blom et al.
JOURNAL OF PEDIATRIC SURGERY (2016)
Health-related quality of life among children, young people and adults with esophageal atresia: a review of the literature and recommendations for future research
Michaela Dellenmark-Blom et al.
QUALITY OF LIFE RESEARCH (2015)
Physiological Studies at 7 Years of Age in Children Born with Esophageal Atresia
Josefin Olbers et al.
EUROPEAN JOURNAL OF PEDIATRIC SURGERY (2015)
International Survey on the Management of Esophageal Atresia
Augusto Zani et al.
EUROPEAN JOURNAL OF PEDIATRIC SURGERY (2014)
Long-term health-related quality of life after complex and/or complicated esophageal atresia in adults and children registered in a German patient support group
Carmen Dingemann et al.
JOURNAL OF PEDIATRIC SURGERY (2014)
Development and Content Validation of the Pediatric Eating Assessment Tool (Pedi-EAT)
Suzanne M. Thoyre et al.
AMERICAN JOURNAL OF SPEECH-LANGUAGE PATHOLOGY (2014)
Pediatric Patient-Reported Outcome Instruments for Research to Support Medical Product Labeling: Report of the ISPOR PRO Good Research Practices for the Assessment of Children and Adolescents Task Force
Louis S. Matza et al.
VALUE IN HEALTH (2013)
Long-term outcome of children with oesophageal atresia type III
Celine Legrand et al.
ARCHIVES OF DISEASE IN CHILDHOOD (2012)
Linguistic validation of translation of the self-assessment goal achievement (saga) questionnaire from English
Elisabeth Piault et al.
HEALTH AND QUALITY OF LIFE OUTCOMES (2012)
Systematic review: symptom assessment using patient-reported outcomes in gastroesophageal reflux disease and dyspepsia
Olivier Chassany et al.
SCANDINAVIAN JOURNAL OF GASTROENTEROLOGY (2012)
Successful implementation of cognitive interviews in special populations
Carla J. DeMuro et al.
EXPERT REVIEW OF PHARMACOECONOMICS & OUTCOMES RESEARCH (2012)
Content Validity-Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 2-Assessing Respondent Understanding
Donald L. Patrick et al.
VALUE IN HEALTH (2011)
Content Validity-Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 1-Eliciting Concepts for a New PRO Instrument
Donald L. Patrick et al.
VALUE IN HEALTH (2011)
Researching Measurement Equivalence in Cross-Cultural Studies
Milos Kankaras et al.
PSIHOLOGIJA (2010)
Associated malformations in patients with esophageal atresia
Claude Stoll et al.
EUROPEAN JOURNAL OF MEDICAL GENETICS (2009)
Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation
Victoria E. Price et al.
HEALTH AND QUALITY OF LIFE OUTCOMES (2009)
Multinational Trials-Recommendations on the Translations Required, Approaches to Using the Same Language in Different Countries, and the Approaches to Support Pooling the Data: The ISPOR Patient-Reported Outcomes Translation and Linguistic Validation Good Research Practices Task Force Report
Diane Wild et al.
VALUE IN HEALTH (2009)
DISABKIDS Smiley questionnaire: The TAKE 6 assisted health-related quality of life measure for 4 to 7-year-olds
John E. Chaplin et al.
CLINICAL PSYCHOLOGY & PSYCHOTHERAPY (2008)
Field testing of a European quality of life instrument for children and adolescents with chronic conditions: the 37-item DISABKIDS Chronic Generic Module
Marie-Claude Simeoni et al.
QUALITY OF LIFE RESEARCH (2007)
Quality criteria were proposed for measurement properties of health status questionnaires
Caroline B. Terwee et al.
JOURNAL OF CLINICAL EPIDEMIOLOGY (2007)
Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation
D Wild et al.
VALUE IN HEALTH (2005)
Issues and challenges of instrument translation
DSF Yu et al.
WESTERN JOURNAL OF NURSING RESEARCH (2004)
Current issues in cross-cultural quality of life instrument development
S Schmidt et al.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION (2003)
Measuring health: Improving the validity of health assessments
B Knauper et al.
QUALITY OF LIFE RESEARCH (2003)