Journal
PHYSICAL MEDICINE AND REHABILITATION CLINICS OF NORTH AMERICA
Volume 35, Issue 1, Pages 193-208Publisher
W B SAUNDERS CO-ELSEVIER INC
DOI: 10.1016/j.pmr.2023.06.015
Keywords
Consciousness; Disorders; Family; Caregiver; Burden; Education; Support; Training
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Caregivers of persons with DoC experience high levels of perceived burden, which is associated with adverse physical, emotional, psychosocial, and financial outcomes and is directly tied to expressed needs for information and support. Providing individualized education and training at each phase of recovery can enhance effective communication between providers and caregivers, helping to increase caregiver proficiency in managing their loved one's care while also helping to mitigate the challenges associated with perceived burden. This may subsequently increase the rate of community discharge among persons with DoC, potentially translating to a reduction in the long-term costs of care for this population.
Caregivers of persons with DoC experience high levels of perceived burden which is associated with adverse physical, emotional, psychosocial, and financial outcomes and is directly tied to expressed needs for information and support. Providing individualized education and training at each phase of recovery can enhance effective communication between providers and caregivers, helping to increase caregiver proficiency in managing their loved one's care while also helping to mitigate the challenges associated with perceived burden. This may subsequently increase the rate of community discharge among persons with DoC, potentially translating to a reduction in the long-term costs of care for this population.
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