Considerations for patient and public involvement and engagement in health research

Letter Biochemistry & Molecular Biology

Patient and public involvement within epidemiological studies of long COVID in the UK

Ash Routen et al.

NATURE MEDICINE (2023)

Editorial Material Biotechnology & Applied Microbiology

The opportunity for greater patient and public involvement and engagement in drug development and regulation

Olalekan Lee Aiyegbusi et al.

Summary: Patients and the wider public can contribute to scientific advancements in the field of medicine by participating in clinical studies, co-designing research, and providing input into regulatory processes.

NATURE REVIEWS DRUG DISCOVERY (2023)

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Article

Non-Pharmacological Therapies for Post-Viral Syndromes, Including Long COVID: A Systematic Review

Joht Singh Chandan et al.

International Journal of Environmental Research and Public Health (2023)

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Article

Co-production of a feasibility trial of pacing interventions for Long COVID

Grace M. Turner et al.

Research Involvement and Engagement (2023)

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Article Medicine, General & Internal

Therapies for Long COVID in non-hospitalised individuals: from symptoms, patient-reported outcomes and immunology to targeted therapies (The TLC Study)

Shamil Haroon et al.

Summary: This study aims to evaluate the symptom burden and underlying pathophysiology of Long COVID syndromes in non-hospitalised individuals and evaluate potential therapies.

BMJ OPEN (2022)

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Review Medicine, General & Internal

Non-pharmacological therapies for postviral syndromes, including Long COVID: a systematic review and meta-analysis protocol

Joht Singh Chandan et al.

Summary: This article discusses postviral syndromes (PVS), specifically the non-pharmacological treatments for long COVID, and summarizes the symptoms and health impacts associated with PVS. The research methods include literature searches and data extraction, with effect estimates being pooled through meta-analysis. The findings of this study will be published in peer-reviewed journals and shared with clinical and patient groups.

BMJ OPEN (2022)

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Article Medicine, General & Internal

Development and validation of the symptom burden questionnaire for long covid (SBQ-LC): Rasch analysis

Sarah E. Hughes et al.

Summary: This study described the development and validation of a novel patient reported outcome measure for symptom burden from long covid, called the Symptom Burden Questionnaire for Long Covid (SBQ-LC). The questionnaire consists of 17 independent scales and has promising psychometric properties. It can be used to evaluate the impact of interventions and inform best practices in clinical management.

BMJ-BRITISH MEDICAL JOURNAL (2022)

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Article Biochemistry & Molecular Biology

Symptoms and risk factors for long COVID in non-hospitalized adults

Anuradhaa Subramanian et al.

Summary: A retrospective analysis of primary care records in the United Kingdom reveals individual symptoms associated with SARS-CoV-2 infections, which persisted for 12 weeks or more after infection, as well as risk factors associated with developing long COVID.

NATURE MEDICINE (2022)

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Article Public, Environmental & Occupational Health

How and why patients made Long Covid

Felicity Callard et al.

Summary: Patients collectively created "Long Covid" and similar terms during the early months of the pandemic, demonstrating a longer and more complex illness course than initially reported. They used social media to spread their experiences and influence formal clinical and policy channels, showing how patients can contribute to changing the understanding and treatment of COVID-19.

SOCIAL SCIENCE & MEDICINE (2021)

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Review Medicine, General & Internal

Symptoms, complications and management of long COVID: a review

Olalekan Lee Aiyegbusi et al.

Summary: Patients with long COVID experience a wide range of physical and mental symptoms, with common issues including fatigue, shortness of breath, and headaches. Beyond symptoms and complications, they often report impaired quality of life, mental health issues, and employment problems.

JOURNAL OF THE ROYAL SOCIETY OF MEDICINE (2021)

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Editorial Material Medicine, General & Internal