Ethical Imperatives for Working With Diverse Populations in Digital Research

Digital research methodologies are driving a revolution in health technology but do not yet fully engage diverse and historically underrepresented populations. In this paper, we explore the ethical imperative for such engagement alongside accompanying challenges related to recruitment, appreciation of risk, and confidentiality, among others. We critically analyze existing research ethics frameworks and find that their reliance on individualistic and autonomy-focused models of research ethics does not offer adequate protection in the context of the diversity imperative. To meet the requirements of justice and inclusivity in digital research, methods will benefit from a reorientation toward more participatory practices.

Automated summary

Digital research methodologies are revolutionizing health technology, but there is a need to engage more diverse and historically underrepresented populations. Current research ethics frameworks do not provide adequate protection in the context of diversity concerns, and a reorientation towards more participatory practices is required to meet the requirements of justice and inclusivity in digital research.