4.7 Article

The Status of Data Management Practices: a Mixed-Method Study across German Medical Data Integration Centers (Preprint)

Related references

Note: Only part of the references are listed.
Article Mathematical & Computational Biology

Structure-based knowledge acquisition from electronic lab notebooks for research data provenance documentation

Max Schroeder et al.

Summary: This study investigates the use of ELN protocols in creating semantic documentation of research data provenance. The manual and automated approaches demonstrated the potential for generalization in creating ready-to-publish bundles containing research data and their semantic documentation, following the FAIR guiding principles.

JOURNAL OF BIOMEDICAL SEMANTICS (2022)

Editorial Material Public, Environmental & Occupational Health

Real-world data: Assessing electronic health records and medical claims data to support regulatory decision-making for drug and biological products

Cynthia J. Girman et al.

PHARMACOEPIDEMIOLOGY AND DRUG SAFETY (2022)

Review Health Care Sciences & Services

Approaches and Criteria for Provenance in Biomedical Data Sets and Workflows: Protocol for a Scoping Review

Kerstin Gierend et al.

Summary: This study aims to investigate existing evidence on approaches and criteria for provenance tracking, as well as identifying current knowledge gaps in the biomedical domain. The research covers modeling aspects and metadata frameworks for meaningful and usable provenance information during the creation and processing of (sensitive) scientific biomedical data.

JMIR RESEARCH PROTOCOLS (2021)

Article Computer Science, Theory & Methods

A Survey on Bias and Fairness in Machine Learning

Ninareh Mehrabi et al.

Summary: With the widespread use of AI systems in everyday life, fairness in design has become crucial. Researchers have developed methods to address biases in different subdomains and established a taxonomy for fairness definitions. Existing work shows biases in AI applications, and researchers are working on solutions to mitigate these problems.

ACM COMPUTING SURVEYS (2021)

Article Medical Informatics

Linking a Consortium-Wide Data Quality Assessment Tool with the MIRACUM Metadata Repository

Lorenz A. Kapsner et al.

Summary: The enhanced DQA tool is linked to metadata repository (MDR) for efficient data quality checks, making it scalable to other databases and data models.

APPLIED CLINICAL INFORMATICS (2021)

Article Computer Science, Theory & Methods

Capturing and Analyzing Provenance from Spark-based Scientific Workflows with SAMbA-RaP

Thaylon Guedes et al.

FUTURE GENERATION COMPUTER SYSTEMS-THE INTERNATIONAL JOURNAL OF ESCIENCE (2020)

Article Computer Science, Information Systems

Enhancing Traceability in Clinical Research Data through a Metadata Framework

Samuel Hume et al.

METHODS OF INFORMATION IN MEDICINE (2020)

Article Computer Science, Information Systems

From FAIR research data toward FAIR and open research software

Wilhelm Hasselbring et al.

IT-INFORMATION TECHNOLOGY (2020)

Article Computer Science, Theory & Methods

A Survey on Collecting, Managing, and Analyzing Provenance from Scripts

Joao Felipe Pimentel et al.

ACM COMPUTING SURVEYS (2019)

Article Computer Science, Interdisciplinary Applications

The REDCap consortium: Building an international community of software platform partners

Paul A. Harris et al.

JOURNAL OF BIOMEDICAL INFORMATICS (2019)

Editorial Material Computer Science, Information Systems

German Medical Informatics Initiative A National Approach to Integrating Health Data from Patient Care and Medical Research

Sebastian C. Semler et al.

METHODS OF INFORMATION IN MEDICINE (2018)

Article Computer Science, Information Systems

MIRACUM: Medical Informatics in Research and Care in University Medicine A Large Data Sharing Network to Enhance Translational Research and Medical Care

Hans-Ulrich Prokosch et al.

METHODS OF INFORMATION IN MEDICINE (2018)

Article Computer Science, Hardware & Architecture

A survey on provenance: What for? What form? What from?

Melanie Herschel et al.

VLDB JOURNAL (2017)

Proceedings Paper Computer Science, Information Systems

Facilitating the Reproducibility of Scientific Workflows with Execution Environment Specifications

Haiyan Meng et al.

INTERNATIONAL CONFERENCE ON COMPUTATIONAL SCIENCE (ICCS 2017) (2017)

Article Computer Science, Theory & Methods

Implementing interoperable provenance in biomedical research

V. Curcin et al.

FUTURE GENERATION COMPUTER SYSTEMS-THE INTERNATIONAL JOURNAL OF ESCIENCE (2014)

Article Mathematical & Computational Biology

The eGenVar data management system-cataloguing and sharing sensitive data and metadata for the life sciences

Sabry Razick et al.

DATABASE-THE JOURNAL OF BIOLOGICAL DATABASES AND CURATION (2014)

Article Biochemical Research Methods

BioQ: tracing experimental origins in public genomic databases using a novel data provenance model

Scott F. Saccone et al.

BIOINFORMATICS (2012)

Article Computer Science, Theory & Methods

Representing distributed systems using the Open Provenance Model

Paul Groth et al.

FUTURE GENERATION COMPUTER SYSTEMS-THE INTERNATIONAL JOURNAL OF ESCIENCE (2011)

Article Computer Science, Artificial Intelligence

Provenance-based reproducibility in the Semantic Web

Luc Moreau

JOURNAL OF WEB SEMANTICS (2011)

Article Health Care Sciences & Services

Good practice in the conduct and reporting of survey research

K Kelley et al.

INTERNATIONAL JOURNAL FOR QUALITY IN HEALTH CARE (2003)