Factors affecting well-being in brain tumor patients: An LMIC perspective

IntroductionBrain tumor is a devastating and often fatal diagnosis; quality of life and patient well-being are important goals of treatment. This study addresses the gap in culture-specific literature exploring the needs and coping strategies of brain tumor patients within an LMIC setting. MethodologyA qualitative approach was undertaken using an exploratory descriptive study design. In-depth interviews were conducted to capture the perspective of 250 brain tumor patients at a private tertiary center followed by extensive content analysis to identify major themes and sub-themes across responses. ResultsThe analysis identified three major themes: (i) Factors affecting the lives of brain tumor survivors (BTSs) and their impact (ii) What works to improve QoL according to the survivors' perspectives, and (iii) Coping tactics & fostering healthy relationships. The need for financial navigation strategies improved patient-physician relationships, and reinforcing positive coping strategies were emphasized. ConclusionIn our population, family support and spiritual connection played an important role in helping patients mitigate the psychosocial burden of illness. However, financial concerns were pervasive and need to be addressed for better overall well-being.

Automated summary

This study bridges the gap in culture-specific literature regarding the needs and coping strategies of brain tumor patients in low- and middle-income countries (LMICs). Through in-depth interviews and extensive content analysis of 250 brain tumor patients, three major themes were identified: factors affecting the lives of brain tumor survivors and their impact, strategies to improve quality of life according to survivors' perspectives, and coping tactics and fostering healthy relationships. The findings highlight the importance of family support, spiritual connection, and addressing financial concerns for better overall well-being.