Visual identifiers for people with dementia in hospitals: a qualitative study to unravel mechanisms of action for improving quality of care

BackgroundHospitalised people with dementia (PwD) experience worse care and more patient safety incidents than non-dementia patients. Visual identifiers are commonly used to identify patients who have a diagnosis of dementia, with the aim of promoting more personalised care. However, little is known about how they work in practice, nor about the potential unintended consequences that might arise from their use. We aim to identify the mechanisms through which visual identifiers could support good care for PwD, how and why their use may have negative consequences and the conditions for their effective use. MethodsWe conducted interviews with 21 dementia leads and healthcare professionals, 19 carers and two PwD, and produced case studies of visual identification systems in four UK acute hospital trusts between 2019 and 2021. Analysis drew on the concept of classification to identify and explore mechanisms of action. ResultsWe identified four mechanisms through which visual identifiers could help towards providing good care for PwD: enabling coordination of care at organisational level; signalling eligibility for dementia-specific interventions; informing prioritisation of resources on wards; and acting as a quick reference cue for staff. But identifier effectiveness could be undermined by: lack of standardisation and consistency; a lack of closely coupled information about individual needs; and stigma associated with a dementia diagnosis. Identifier effectiveness was dependent on their implementation being supported through staff training, resources directed and efforts to develop a supportive culture for caring for this patient group. ConclusionOur research highlights the potential mechanisms of action of visual identifiers and their possible negative consequences. Optimising the use of identifiers requires consensus on the rules of classification and the symbols used, and closely coupled patient information. Organisations need to provide support, offer the right resources and training and engage meaningfully with carers and patients about the use of identifiers.

Automated summary

This study aims to investigate the use, potential negative consequences, and effective conditions of visual identifiers for patients with dementia. Through case studies and interviews with experts and patients, it was found that visual identifiers can facilitate personalized care, resource prioritization, and coordination of care. However, inconsistent standards, lack of individual patient information, and stigma associated with dementia diagnosis can undermine their effectiveness. Optimizing the use of identifiers requires consensus, support, training, and meaningful engagement with caregivers and patients.