An evidence-based approach to provide essential and desirable components to develop surveys on Sudden Unexpected Death in Epilepsy (SUDEP) for doctors: A focused review

Article Clinical Neurology

Sudden unexpected death in epilepsy: A pilot study on neurologists' knowledge and experience in the Eastern Mediterranean region

Dina Amin Saleh et al.

Summary: Neurologists in the EMR rarely discuss SUDEP and have limited knowledge about its risk factors. When discussing SUDEP, neurologists overwhelmingly receive negative reactions, but not always.

SEIZURE-EUROPEAN JOURNAL OF EPILEPSY (2022)

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Article Behavioral Sciences

Counseling about sudden unexpected death in epilepsy (SUDEP): A global survey of neurologists' opinions

Ali A. Asadi-Pooya et al.

Summary: This study investigates the opinions and attitudes of neurologists worldwide regarding counseling about sudden unexpected death in epilepsy (SUDEP). The results indicate that many neurologists rarely discuss the risk of SUDEP with patients and their caregivers, suggesting a severe lack of attention to this matter.

EPILEPSY & BEHAVIOR (2022)

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Article Medicine, General & Internal

Discussion of the Brazilian neurologists about sudden unexpected death in epilepsy

Amanda Mosini et al.

Summary: This study evaluated the attitude of health professionals affiliated with the Brazilian League of Epilepsy towards informing patients about the risk factors for sudden unexpected death in epilepsy. The results indicated that although most professionals believed in early discussion with patients, few actually engaged in such discussions.

REVISTA DA ASSOCIACAO MEDICA BRASILEIRA (2022)

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Article Clinical Neurology

How the characteristics of pediatric neurologists in Latin America influence the communication of sudden unexpected death in epilepsy to patients and caregivers

Viviana Venegas et al.

Summary: Although most pediatric neurologists agree that communication about SUDEP is relevant, only a minority actually engages in it. Factors that increased the frequency of SUDEP communication included patients with higher levels of complexity and the physician's personal experience with SUDEP.

EPILEPSIA OPEN (2022)

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Article Behavioral Sciences

Sudden unexpected death in epilepsy: Experience of neurologists in Saudi Arabia

Tahir Hakami et al.

Summary: The study revealed that neurologists in Saudi Arabia do not frequently discuss Sudden Unexpected Death in Epilepsy (SUDEP) with their patients, and when they do, they emphasize a more individualized approach. However, the majority of neurologists have only a limited understanding of SUDEP risk factors.

EPILEPSY & BEHAVIOR (2021)

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Article Clinical Neurology

Why child neurologists talk about SUDEP: Results from two cross-sectional surveys

Anne E. Keller et al.

Summary: Most child neurologists do not adhere to the current SUDEP Clinical Practice Guideline regarding SUDEP discussion. Feeling sufficiently knowledgeable and ethically obligated to discuss SUDEP were associated with increased discussion practice, suggesting that an educational intervention may be effective in increasing SUDEP discussion rates.

EPILEPSIA OPEN (2021)

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Article Clinical Neurology