4.5 Article

School participation among young people with craniofacial microsomia and other childhood-onset disabilities

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WILEY
DOI: 10.1111/dmcn.15628

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This study aimed to examine the impact of school environment, physical functioning problems, and behavioral problems on school participation levels among young people with craniofacial microsomia (CFM) and other childhood-onset disabilities, as well as the role of participation-focused caregiver strategies. The findings confirmed the positive effect of school environmental support on school participation attendance and highlighted the importance of participation-focused caregiver strategies in enhancing this effect.
AimTo examine how school environment, physical functioning problems, and behavioral problems explain levels of school participation (i.e. attendance and involvement) among young people with craniofacial microsomia (CFM) and other childhood-onset disabilities, and whether participation-focused caregiver strategies play a role in these relationships. MethodWe conducted secondary analyses of a subset of data (n = 260 families: 120 with CFM and 140 with other childhood-onset disabilities) from the second follow-up phase of a longitudinal cohort study. We applied structural equation modeling with data collected from the Participation and Environment Measure - Children and Youth version, the Child Behavior Checklist, and the Pediatric Quality of Life Inventory physical functioning scale. ResultsModel fit was acceptable to close (comparative fit index = 0.973; root mean square error of approximation = 0.055; standardized root mean squared residual = 0.043; Tucker-Lewis index = 0.958). School environmental support had a positive effect on young people's participation attendance and involvement, and physical functioning problems had a negative effect on participation involvement. The number of disclosed caregiver strategies had a significant positive effect on the relationship between school environmental support and school participation attendance. InterpretationFindings confirm the effect of school environmental support and physical functioning problems on school participation and highlight the role of participation-focused caregiver strategies to intensify the positive effect of school environmental support on school participation attendance.

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