Ethical considerations about the collection of biological samples for genetic analysis in clinical trials

Article Ethics

Engaging key stakeholders to overcome barriers to studying the quality of research ethics oversight

Emily E. Anderson et al.

Summary: The primary purpose of Institutional Review Boards (IRBs) is to protect the rights and welfare of human research participants. However, research on IRBs and Human Research Protection Programs (HRPPs) has been limited, mainly due to barriers such as workloads, limited information technology systems, and lack of universally accepted metrics for quality and effectiveness. To address these barriers and promote engagement in self-reflective research, it is important to involve HRPP professionals as participants, data sharers, and investigators. This research should also be guided by patient- and community-engaged research principles.

RESEARCH ETHICS (2023)

Add to Collection

Article Genetics & Heredity

Navigating a world of genes: A conceptual analysis of gene fetishism, geneticization, genetic exceptionalism and genetic essentialism

Ruel Mannette

Summary: The paper discusses four terms related to the interaction between genetics and society, emphasizing the importance of clarifying their meanings for the development of relevant fields and the exploration of bioethics.

EUROPEAN JOURNAL OF MEDICAL GENETICS (2021)

Add to Collection

Article Oncology

Analyses of the Rationale and Implementation of Research Biopsies in Oncology Clinical Trials at a Tertiary Cancer Center

Nathalie Olympios et al.

Summary: The study found that the demand for biopsy tissue has increased in clinical trials, while compliance with the ASCO Ethical Framework has decreased. This underscores the importance of improving the ethics of research biopsies.

ONCOLOGIST (2021)

Add to Collection

Article Ethics