Spring is not yet here: raising a child with ASD in rural southwest China

PurposeThis study aims to reveal the parenting experiences of parents of children with autism spectrum disorder (ASD) in rural southwest China under the framework of ecological systems theory.Materials and methodsSemi-structured interviews were conducted with 21 parents of children with ASD from rural southwest China and the interview data were analyzed using the three coding steps of the grounded theory method, namely open, axial, and selective coding.ResultsThe results showed four themes: challenges from within the family; relationships between parents, the school, and the community; scarcity and low accessibility of available resources and services; the culture of discriminating against people with disabilities and the loss of eligibility for welfare. The mismatch between the needs of families of children with ASD and the resources available in social-environmental systems is the major issue faced by parents.ConclusionsRaising a child with ASD in rural southwest China is affected by the interactions between the families and the internal structures in different environmental systems. The culture of discriminating against people with disabilities formed in the macrosystem could be the essential factor that affects the smoothness of the parenting process of children with ASD.

Automated summary

The purpose of this study is to reveal the parenting experiences of parents of children with autism spectrum disorder (ASD) in rural southwest China. The results showed that challenges from within the family, relationships between parents, the school, and the community, scarcity and low accessibility of available resources and services, and the culture of discriminating against people with disabilities and the loss of eligibility for welfare are the major issues faced by parents. The mismatch between the needs of families of children with ASD and the resources available in social-environmental systems is a significant concern.