4.0 Article

'I could no longer cope at home': Experiences of clients and families in residential aged care within the context of Australia's aged care reforms

Journal

AUSTRALASIAN JOURNAL ON AGEING
Volume 42, Issue 2, Pages 344-354

Publisher

WILEY
DOI: 10.1111/ajag.13159

Keywords

Australia; consumer experience; health care reform; nursing homes; quality of care

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This study explores the lived experiences and expectations of clients and families in residential aged care facilities amid major aged care reforms in Australia. The findings highlight the discrepancy between the experiences of care delivered and expectations of meeting initial and changing care needs.
ObjectivesSince 2012, Australia has been undertaking major aged care reforms, moving from a previously service provider-focussed approach to a more consumer-oriented policy direction. There is limited research examining consumer perspectives of residential care in the reform environment particularly with respect to both clients and their families. This study explores the lived experiences of clients and families in residential aged care facilities amid the reform implementation process. MethodsUsing a qualitative descriptive research methodology, individual interviews were conducted with clients and family members (n = 10) about their expectations and experiences of residential care. Participants were drawn from two not-for-profit aged care providers. ResultsTwo broad themes emerged: (i) entering residential aged care and related issues, with subthemes including reasons for entering, decision-making processes, choice of provider/facility and impact of entering care facilities; and (ii) expectations and experiences of care delivery, with subthemes including issues of staffing, service provision, communication and awareness of living in or through the reform environment. The discrepancy between the experiences of care delivered and expectations of initial and changing care needs being met was a major concern. ConclusionsThis study presents a snapshot of the expectations and experiences of both the client and the family cohorts in residential care under the reform conditions. Adequately addressing the relational and interpersonal elements of care delivery is critical in fulfilling the reforms' consumer-oriented objectives.

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