Journal
INTERNATIONAL JOURNAL OF SOCIAL PSYCHIATRY
Volume 69, Issue 3, Pages 543-550Publisher
SAGE PUBLICATIONS LTD
DOI: 10.1177/00207640221114564
Keywords
Schizophrenia; caregiver; burden; qualitative method
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This study used in-depth interviews to explore the burden experiences of parents caring for schizophrenic patients. The findings revealed emotional, social, and economic burdens, including stigma, social isolation, and self-stigmatization. These burdens negatively affected the parents' well-being.
Background: Parents of children with schizophrenia struggle with emotional, social, and economic burdens because they do not receive adequate support and experience difficulties. Aim: To determine the caregiver burden experiences of parents who care for schizophrenic patients and to provide in-depth data on their feelings, thoughts, and opinions on this issue. Methods: In this study, the phenomenological method was used. In-depth interviews were conducted with 13 parents. Maxqda 2020 was used for the analysis of the research data. Results: In our qualitative study, it was concluded that caregivers were stigmatized by their environment, exposed to social isolation, and stigmatized themselves. It has been determined that the social isolation experienced by the parents negatively affects them economically, socially, and emotionally. Conclusion: The results of this study were discussed within the framework of three themes: emotional burden, social burden, and economic burden experienced by caregivers.
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