Journal
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
Volume 19, Issue 21, Pages -Publisher
MDPI
DOI: 10.3390/ijerph192113935
Keywords
community care; integrated care; mental health; service users and relatives' interventions; service users and relatives' interaction
Funding
- Government of Catalonia
- Barcelona City Council
- Spanish Ministry of Health, Social Services and Equality
- La Caixa Foundation
- Otsuka
- Lundbeck
- Janssen
- Fundacion Roca i Pi, Roca i Salvatella
- Fundacion Roviralta
- Catalan provincial government (Barcelona)
- Catalan provincial government (Girona)
- Catalan provincial government (Lleida)
- Catalan provincial government (Tarragona)
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Relatives play a crucial role in the recovery journey of individuals with mental health disorders. The participation and impact of both service users and their relatives interact with each other, influencing their recovery and care burden. These findings are significant for future projects focusing on the well-being of mental health service users and their relatives.
Relatives play an important role in the recovery journey of mental health service users. Interventions directed either at service users or their relatives may influence the other person as well. The project 'Activa't per la salut mental' (Get active for mental health) consisted of a series of four interventions addressed at people diagnosed with mental disorders and their relatives to help them in their recovery process, increasing their agency and quality of life. The main objective of the present study is to evaluate the interaction of the participation of service users on their relatives' outcomes and vice versa. The impact of the project was evaluated within a randomised controlled trial. The treatment group had access to all the circuit interventions, while the control group received treatment as usual and could only access one of the interventions. All participants were evaluated at baseline, six months, and twelve months after the end of the first intervention. Service users were evaluated with the Stages of Recovery Instrument, and relatives with the Family Burden Interview Schedule II and the Duke-UNC-11 questionnaires. The interaction of participation and impact between service users and their relatives was analysed by means of correlational analyses within the intervention group (n = 111, service users mean age = 40.6, 40% women; relatives mean age = 56.7, 72% women). Service users' baseline characteristics (being in a relationship, educational level, employment, and younger age) influenced in the level of participation of relatives and vice versa (lower educational level). The results also indicated correlations between participation and outcomes at various points as well as the evolution of service users' recovery and the care burden of relatives. Service users' participation levels interacted with the decrease of relatives' frequency of burden and the first steps of their own recovery journey (moratorium, awareness, and preparation) while relative's participation just interacted with the evolution of two stages of service users' recovery levels (preparation and growth). These results can be extremely helpful in fostering interactive benefits in future projects addressing the wellbeing of mental health service users and their relatives. Future studies could use specific designs to explore the directionality of the causality of these effects.
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