The Validity of Health-Related Quality of Life Instruments in Patients With Late-Stage Parkinson's Disease

Article Geriatrics & Gerontology

Caregiver Burden in Late-Stage Parkinsonism and Its Associations

Stefania Kalampokini et al.

Summary: Caring for patients with late-stage parkinsonism is associated with significant burden on caregivers, especially when patients exhibit multiple neuropsychiatric and non-motor symptoms, and when caring for male patients at home.

JOURNAL OF GERIATRIC PSYCHIATRY AND NEUROLOGY (2022)

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Article Geriatrics & Gerontology

Exploration of Parkinson's Disease Symptomatology Subtypes From the Caregiver Perspective: Implications for Caregiver Burden, Depression, and Anxiety

Sarah K. Lageman et al.

Summary: This study identified five symptomatology subtypes of PD from the perspective of caregivers, with the greatest burden observed for caregivers of individuals in the severe diffuse symptom and moderate restricted symptoms with speech/oral predominant clusters. Additionally, high caregiver depression and anxiety were found in all clusters except for the low symptoms cluster. The study also revealed that symptom patterns contribute to caregiver functioning in similar ways in the U.S. and Mexico.

JOURNAL OF GERIATRIC PSYCHIATRY AND NEUROLOGY (2022)

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Article Neurosciences

Neuropsychiatric Symptoms in Parkinson's Disease Patients Are Associated with Reduced Health-Related Quality of Life and Increased Caregiver Burden

Hannah von Eichel et al.

Summary: Neuropsychiatric symptoms have a profound impact on the health-related quality of life of people with Parkinson's disease and the burden on their caregivers.

BRAIN SCIENCES (2022)

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Article Multidisciplinary Sciences

Measuring quality of life with the Parkinson's Disease Questionnaire-39 in people with cognitive impairment

Aline Schoenenberg et al.

Summary: The study aimed to assess the validity of the Parkinson's Disease Questionnaire-39 in PD patients; it was found that the PDQ-39 can be used to measure QoL in cognitively impaired PD patients, and exclusion of PD patients based solely on cognitive impairment test scores is not appropriate.

PLOS ONE (2022)

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Article Clinical Neurology

Perspectives on Care for Late-Stage Parkinson's Disease

Kristina Rosqvist et al.

Summary: In the late stage of Parkinson's disease, both patients and informal caregivers face increasing burdens in managing symptoms and everyday life. Regular access to PD-specialised health care, greater availability of physiotherapy, and a multidisciplinary approach to symptom management are all important factors in providing satisfactory care and support. Maintaining autonomy, responsibility, and loyalty within the family are also crucial for the functioning of everyday life.

PARKINSONS DISEASE (2021)

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Article Neurosciences

Relationship Satisfaction in People with Parkinson's Disease and Their Caregivers: A Cross-Sectional Observational Study

Johanne Heine et al.

Summary: Parkinson's disease affects the relationship satisfaction between patients and their caregivers, which is influenced by factors such as reduced HR-QoL, increased depressive symptoms, higher caregiver burden, and worsening neuropsychiatric symptoms in patients. Further studies are needed to explore the longitudinal impact of these factors and the reciprocal influence of relationship satisfaction on caregiver burden, HR-QoL, and mental and physical health.

BRAIN SCIENCES (2021)

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Article Health Care Sciences & Services