4.5 Editorial Material

The lived experience COMMENT

Related references

Note: Only part of the references are listed.
Article Gastroenterology & Hepatology

'Let's talk about sex': a patient-led survey on sexual function after colorectal and pelvic floor surgery

Nicola B. Dames et al.

Summary: This study is the first patient-designed and delivered research exploring sexual function after colorectal surgery. The results showed significant impact on patients' sexual life after surgery, highlighting the lack of preoperative advice on sex and its implications on informed consent.

COLORECTAL DISEASE (2021)

Article Oncology

Immediate postoperative experiences before discharge among patients with rectal cancer and a permanent colostomy: A qualitative study

Le Jian He et al.

Summary: This study revealed that patients with rectal cancer and a permanent colostomy in China experienced psychological reactions, daily life concerns, stoma care considerations, and support from others before discharge. Nurses should provide effective guidance, correct misunderstandings, and promote transitional care for these patients.

EUROPEAN JOURNAL OF ONCOLOGY NURSING (2021)

Article Medicine, General & Internal

'Because Everybody is so Different': a qualitative analysis of the lived experiences and information needs of rectal cancer survivors

Catherine H. Saunders et al.

Summary: The study found that rectal cancer significantly impacts patients' lives in various ways, including daily activities, self-identity, intimacy, and mental health. Patients require personalized care, counseling, and information for better medical experiences and outcomes. Surgeons need to improve their understanding of patient experiences and provide more comprehensive counseling in key areas like intimacy and mental health.

BMJ OPEN (2021)

Article Environmental Sciences

Living with a Stoma: Exploring the Lived Experience of Patients with Permanent Colostomy

Areti Stavropoulou et al.

Summary: The study investigated the lived experience of patients with permanent colostomy, identifying three main themes: experiencing a traumatic event, living a new reality, and efforts to improve quality of life. Autonomy, family and organizational support, self-management, and empowerment were found to significantly enhance patients' quality of life. Further research on caregivers' experience and community nursing care is suggested.

INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH (2021)

Editorial Material Gastroenterology & Hepatology

Sex belongs in the doctor's office

Gabrielle H. van Ramshorst

COLORECTAL DISEASE (2020)

Article Surgery

Patient-Surgeon Agreement in Assessment of Frailty, Physical Function, & Social Activity

Teryn A. Holeman et al.

JOURNAL OF SURGICAL RESEARCH (2020)

Article Gastroenterology & Hepatology

Patient Perceptions and Quality of Life After Colon and Rectal Surgery: What Do Patients Really Want?

Sean M. Wrenn et al.

DISEASES OF THE COLON & RECTUM (2018)

Editorial Material Medicine, General & Internal

Shared Decision Making

Mack Lipkin

JAMA INTERNAL MEDICINE (2013)

Editorial Material Multidisciplinary Sciences

Democratizing clinical research

Keith Lloyd et al.

NATURE (2011)

Article Psychiatry

Consumer participation in mental health research: articulating a model to guide practice

Brenda Happell et al.

AUSTRALASIAN PSYCHIATRY (2007)

Article Public, Environmental & Occupational Health

The experiential knowledge of patients: a new resource for biomedical research?

JF Caron-Flinterman et al.

SOCIAL SCIENCE & MEDICINE (2005)

Article Gastroenterology & Hepatology

What do patients want? Patient preferences and surrogate decision making in the treatment of colorectal cancer

MJ Solomon et al.

DISEASES OF THE COLON & RECTUM (2003)