☆ 4.6 Article

Development and Implementation of the AIDA International Registry for Patients With Undifferentiated Systemic AutoInflammatory Diseases

FRONTIERS IN MEDICINE (2022)

Related references

Note: Only part of the references are listed.

Article Ophthalmology

Development and Implementation of the AIDA International Registry for Patients with Non-Infectious Uveitis

Francesca Della Casa et al.

Summary: This paper introduces the design, development, and deployment of the Autoinflammatory Disease Alliance (AIDA) International Registry, which aims to provide medical services for pediatric and adult patients with non-infectious uveitis (NIU). By collecting standardized data, this registry helps generate real-world evidence and facilitates international multicenter collaborative research.

OPHTHALMOLOGY AND THERAPY (2022)

Add to Collection

Article Ophthalmology

Development and Implementation of the AIDA International Registry for Patients with Non-Infectious Scleritis

Francesca Della Casa et al.

Summary: This article introduces the design, methods, development and deployment of the international registry promoted by the AutoInflammatory Disease Alliance (AIDA) Network for defining and assessing patients with immune-mediated scleritis. The registry collects real-world data from patients worldwide and allows standardized data collection while ensuring data security and anonymity. It also communicates with similar registries to promote research collaboration. The registry has already involved 99 centers from 20 countries and has shown significant progress in terms of participant numbers and data collection.

OPHTHALMOLOGY AND THERAPY (2022)

Add to Collection

Review Medicine, General & Internal

Syndrome of Undifferentiated Recurrent Fever (SURF): An Emerging Group of Autoinflammatory Recurrent Fevers

Riccardo Papa et al.

Summary: This review focuses on the clinical manifestations, genotyping, and treatment response of patients with Syndrome of undifferentiated recurrent fever (SURF), with a preliminary set of indications for the clinical suspicion of SURF proposed to aid in everyday clinical practice.

JOURNAL OF CLINICAL MEDICINE (2021)

Add to Collection

Review Oncology

The role of patients' associations

Audrey Helaine et al.

BULLETIN DU CANCER (2020)

Add to Collection

Review Genetics & Heredity

Inflammasome inhibition under physiological and pharmacological conditions

Emily A. Caseley et al.

GENES AND IMMUNITY (2020)

Add to Collection

Article Rheumatology

Classification criteria for autoinflammatory recurrent fevers

Marco Gattorno et al.

ANNALS OF THE RHEUMATIC DISEASES (2019)

Add to Collection

Review Genetics & Heredity

Challenges of developing and conducting clinical trials in rare disorders

Lucas Kempf et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2018)

Add to Collection

Article Immunology

Diagnostic criteria for adult-Onset Periodic Fever, aphthous stomatitis, Pharyngitis, and cervical adenitis (PFAPA) syndrome

Luca Cantarini et al.

FRONTIERS IN IMMUNOLOGY (2017)

Add to Collection

Article Pediatrics

Chronic recurrent multifocal osteomyelitis (CRMO) - advancing the diagnosis

M. R. Roderick et al.

PEDIATRIC RHEUMATOLOGY (2016)

Add to Collection

Article Medicine, Research & Experimental

Anakinra as a diagnostic challenge and treatment option for systemic autoinflammatory disorders of undefined etiology

Stephanie R. Harrison et al.

JCI INSIGHT (2016)

Add to Collection

Article Dermatology

The International Criteria for Behcet's Disease (ICBD): a collaborative study of 27 countries on the sensitivity and specificity of the new criteria

F. Davatchi et al.

JOURNAL OF THE EUROPEAN ACADEMY OF DERMATOLOGY AND VENEREOLOGY (2014)

Add to Collection

Review Allergy

Schnitzler's syndrome: diagnosis, treatment, and follow-up

A. Simon et al.

ALLERGY (2013)

Add to Collection

Article Computer Science, Interdisciplinary Applications

Research electronic data capture (REDCap)-A metadata-driven methodology and workflow process for providing translational research informatics support

Paul A. Harris et al.

JOURNAL OF BIOMEDICAL INFORMATICS (2009)

Add to Collection

Article Cardiac & Cardiovascular Systems

Patient Advocacy: What Is Its Role?

Alice Ann Lara et al.

PACE-PACING AND CLINICAL ELECTROPHYSIOLOGY (2009)

Add to Collection

Article Rheumatology

A new set of criteria for the diagnosis of familial Mediterranean fever in childhood

Fato Yalcinkaya et al.

RHEUMATOLOGY (2009)

Add to Collection

Article Medicine, General & Internal

Proposal for a new set of classification criteria for adult-onset Still disease

B Fautrel et al.

MEDICINE (2002)

Add to Collection

© Peeref 2019-2024. All rights reserved.