4.6 Review

The Burden of Living With Cutaneous Lupus Erythematosus

Journal

FRONTIERS IN MEDICINE
Volume 9, Issue -, Pages -

Publisher

FRONTIERS MEDIA SA
DOI: 10.3389/fmed.2022.897987

Keywords

quality of life; psychosocial impact; racial minorities; cutaneous lupus erythematosus (CLE); disease burden

Funding

  1. NIH [R01AR065493-01, R01MD010455-01, R01AR070898-01]
  2. CDC [U01DP005119]
  3. Centers for Disease Control and Prevention of the U.S. Department of Health and Human Services (HHS) [U01 DP19003, U01 DP005119]
  4. CDC/HHS [CDC-RFA-DP08-806]

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This review examines the psychosocial burden faced by patients with Cutaneous lupus erythematosus (CLE), and explores the relationships between disease characteristics, patient factors, and social determinants of health. Additionally, it highlights the need for patient care and research to improve quality of life.
Cutaneous lupus erythematosus (CLE) is a group of heterogeneous autoimmune disorders primarily affecting the skin. Patients with these conditions are mostly young women when they become sick and often suffer from recurrent skin symptoms or longstanding changes in their physical appearance. CLE disorders lead to different levels of morbidity and can impact profoundly patients' quality of life, particularly in the psychological and social health domains. This review provides a summary of recent research investigating the psychosocial burden of living with CLE and the intersect amongst the disease characteristics, patient factors, and social determinants of health. Furthermore, this review provides insight into patient care and research needs that remain unmet to improve the quality of life of patients living with CLE.

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