Development and outcomes of a patient driven cystic fibrosis quality of care improvement project

The Dutch CF Foundation (NCFS) developed a quality improvement program, to assess and improve qual-ity of care in all CF centers in The Netherlands. Criteria to assess quality of care from the patient per-spective were defined, and quality of care was assessed by patients via online surveys and site visits. Recommendations were addressed to all centers to improve quality of care. Most recommendations were related to communicational issues. All centers were given the quality mark of the patient organisation, although two of them needed extra time to meet the lower limit of the core set of criteria. After two years, over 75 % of the recommendations given to the centers were fully or partly implemented, showing a high efficacy of the program.(c) 2022 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.

Automated summary

The Dutch CF Foundation (NCFS) developed a quality improvement program to assess and improve the quality of care in CF centers in the Netherlands. Patient assessments, online surveys, and site visits were used to evaluate quality of care and provide recommendations, mainly focused on communication issues. All centers received the quality mark from the patient organization, with the majority implementing the recommendations after two years, demonstrating the program's high efficacy.