Journal
JOURNAL OF PATIENT EXPERIENCE
Volume 9, Issue -, Pages -Publisher
SAGE PUBLICATIONS INC
DOI: 10.1177/23743735221074171
Keywords
Cancer; communication; COVID-19; end-of-life care; patient/relationship-centred skills; quality of life
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Despite abundant research on COVID-19, there is a lack of evidence regarding the specific needs and experiences of cancer patients at the end-of-life stage. This study retrospectively describes the care provided to 34 hospitalized cancer patients who died from COVID-19. The study evaluates the main aspects of end-of-life care, including pain and symptom management, communication and decision-making, and the involvement of the palliative care team. While physical symptoms were managed adequately, the study highlights the high levels of anxiety among patients and their families, indicating the complexity of dealing with a stigmatized disease. The findings emphasize the importance of recognizing the vulnerability of advanced cancer patients with COVID-19 and the need for proactive symptom management, anticipatory communication, and adequate family support.
Despite a wealth of research regarding COVID-19, little evidence exists about cancer patients' specific needs and experiences at end-of-life. This study retrospectively describes the care of 34 hospitalised cancer patients dying with COVID-19. The palliative care needs of patients were described. The main domains of end-of-life care service provision were evaluated including treatment of pain and other symptoms, communication and decision making at end-of-life and level of involvement of the palliative care team. Physical symptoms were managed with relatively low doses of end-of-life medications. High levels of patient and family anxiety, however, highlight the complexity of death from a stigmatised disease. Prompt acknowledgement of the vulnerability of advanced cancer patients with COVID-19 can facilitate proactive symptom management, anticipatory communication and enhance family support.
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