4.6 Article

That was a tip from my physician-Gender-specific pathways of patients and relatives to outpatient psychosocial cancer counselling centres-A qualitative study

Journal

PSYCHO-ONCOLOGY
Volume 31, Issue 6, Pages 1022-1030

Publisher

WILEY
DOI: 10.1002/pon.5893

Keywords

cancer; cancer counselling service; consultation; gender; men; outpatient psychosocial cancer counselling centres; patients' needs; psycho-oncology; psychosocial

Funding

  1. Deutsche Krebshilfe [110891]

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This study aims to identify pathways patients and their relatives take to outpatient psychosocial cancer counselling centres, with a special focus on easing access for men. The results show that important pathways for both men and women include information about the service, easy access, and recommendations from others. For men in particular, positive recommendations from their treating physician and others they trust, organization by others, internet, talking to a male counsellor, routine referrals from hospitals, and emphasis on information sharing are important pathways. In contrast, women more often discover and access counselling centres through information material.
Objective This study aims to identify pathways patients and their relatives take to outpatient psychosocial cancer counselling centres. We had a special interest in how access for men can be eased. Methods Cancer patients and relatives were purposively sampled in two regions in Germany. Participants were either outpatient cancer counselling centres (OCCCs) users or non-users and participated in qualitative face-to-face interviews. We used different guidelines for users and non-users. The interviews were analysed using content analysis. Results One hundred and three people participated in the study. Important pathways to outpatient psychosocial cancer counselling centres for both men and women were: information about the service and its content, easy access (obtaining appointments quickly and without bureaucracy, close to home), and recommendations from another person, in particular from their treating physician. Pathways especially important for men are positive and repeated recommendations from their treating physician and other people they trust, organisation by others on the men's behalf, the Internet, the possibility to talk to a male counsellor, making it a routine in the hospital to refer distressed patients to the counselling services, and the emphasis on information sharing. Women reported more often than men that they discovered and accessed OCCCs via information material. Conclusions Men in particular need recommendations from others, especially from their treating physician, in order to make use of psychosocial cancer counselling. In addition, stressing the provision of information instead of exploring and expressing emotions can ease access for men to cancer counselling.

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