Related references
Note: Only part of the references are listed.Development of a New Quality of Life Measure for Duchenne Muscular Dystrophy Using Mixed Methods The DMD-QoL
Philip A. Powell et al.
NEUROLOGY (2021)
Development of a New Quality of Life Measure for Duchenne Muscular Dystrophy Using Mixed Methods
Philip A. Powell et al.
NEUROLOGY (2021)
Capturing the patient voice: implementing patient-reported outcomes across the health system
Elizabeth Austin et al.
QUALITY OF LIFE RESEARCH (2020)
Harnessing the patient voice in prostate cancer research: Systematic review on the use of patient-reported outcomes in randomized controlled trials to support clinical decision-making
Mieke Van Hemelrijck et al.
CANCER MEDICINE (2020)
Measuring quality of life in Duchenne muscular dystrophy: a systematic review of the content and structural validity of commonly used instruments
Philip A. Powell et al.
HEALTH AND QUALITY OF LIFE OUTCOMES (2020)
Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy
Roni Propp et al.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY (2019)
Harnessing the patient voice in real-world evidence: the essential role of patient-reported outcomes
Melanie J. Calvert et al.
NATURE REVIEWS DRUG DISCOVERY (2019)
PsAID12 Provisionally Endorsed at OMERACT 2018 as Core Outcome Measure to Assess Psoriatic Arthritis-specific Health-related Quality of Life in Clinical Trials
Ana-Maria Orbai et al.
JOURNAL OF RHEUMATOLOGY (2019)
Development and psychometric properties of the Thai Graves' ophthalmopathy quality of life (GO-QOL) questionnaire
Mingkwan Lumyongsatien et al.
JOURNAL OF PATIENT-REPORTED OUTCOMES (2019)
The burden, epidemiology, costs and treatment for Duchenne muscular dystrophy: an evidence review
S. Ryder et al.
ORPHANET JOURNAL OF RARE DISEASES (2017)
Measuring hemophilia caregiver burden: validation of the Hemophilia Caregiver Impact measure
Carolyn E. Schwartz et al.
QUALITY OF LIFE RESEARCH (2017)
Emerging Guidelines for Patient Engagement in Research
John R. Kirwan et al.
VALUE IN HEALTH (2017)
Introduction to bifactor polytomous item response theory analysis
Michael D. Toland et al.
JOURNAL OF SCHOOL PSYCHOLOGY (2017)
Transitioning to adulthood with a progressive condition: best practice assumptions and individual experiences of young men with Duchenne muscular dystrophy
Yani Hamdani et al.
DISABILITY AND REHABILITATION (2015)
Patient and public engagement in health-related quality of life and patient-reported outcomes research: what is important and why should we care? Findings from the first ISOQOL patient engagement symposium
Kirstie Haywood et al.
QUALITY OF LIFE RESEARCH (2015)
The Performance of RMSEA in Models With Small Degrees of Freedom
David A. Kenny et al.
SOCIOLOGICAL METHODS & RESEARCH (2015)
Newborn bloodspot screening for Duchenne Muscular Dystrophy: 21 years experience in Wales (UK)
Stuart J. Moat et al.
EUROPEAN JOURNAL OF HUMAN GENETICS (2013)
Evidence-Based Path to Newborn Screening for Duchenne Muscular Dystrophy
Jerry R. Mendell et al.
ANNALS OF NEUROLOGY (2012)
The Symptom Inventory Disability-Specific Short Forms for Multiple Sclerosis: Construct Validity, Responsiveness, and Interpretation
Carolyn E. Schwartz et al.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION (2012)
The Symptom Inventory Disability-Specific Short Forms for Multiple Sclerosis: Reliability and Factor Structure
Carolyn E. Schwartz et al.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION (2012)
Attention Deficit Hyperactivity Disorder and Cognitive Function in Duchenne Muscular Dystrophy: Phenotype-Genotype Correlation
Marika Pane et al.
JOURNAL OF PEDIATRICS (2012)
PROMIS® Parent Proxy Report Scales: an item response theory analysis of the parent proxy report item banks
James W. Varni et al.
QUALITY OF LIFE RESEARCH (2012)
Delayed Diagnosis in Duchenne Muscular Dystrophy: Data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet)
Emma Ciafaloni et al.
JOURNAL OF PEDIATRICS (2009)
Having a fit: impact of number of items and distribution of data on traditional criteria for assessing IRT's unidimensionality assumption
Karon F. Cook et al.
QUALITY OF LIFE RESEARCH (2009)
The Patient-Reported Outcomes Measurement Information System (PROMIS) Progress of an NIH roadmap cooperative group during its first two years
David Cella et al.
MEDICAL CARE (2007)
The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment
David Cella et al.
QUALITY OF LIFE RESEARCH (2007)
The role of the bifactor model in resolving dimensionality issues in health outcomes measures
Steven P. Reise et al.
QUALITY OF LIFE RESEARCH (2007)
Validation of a new quality of life measure for children with epilepsy
M Sabaz et al.
EPILEPSIA (2000)
Longitudinal construct validity - Establishment of clinical meaning in patient evaluative instruments
MH Liang
MEDICAL CARE (2000)