4.6 Article

In the family: access to, and communication of, familial information in clinical practice

Journal

HUMAN GENETICS
Volume 141, Issue 5, Pages 1053-1058

Publisher

SPRINGER
DOI: 10.1007/s00439-021-02401-0

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The topic of how genetic information should be kept confidential while respecting the interests of others, such as close relatives, has been debated extensively since genetic testing became more common. In this paper, two authors with differing views on familial disclosure discuss where they agree on this subject.
How an individual's genetic information is governed by confidentiality, and how the interests of others-such as close relatives-in knowing such information might be respected, has been the topic of much debate ever since genetic testing has become more prevalent. In this paper, two authors who often appear to have different views on familial disclosure, discuss where they agree on this topic.

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