Related references
Note: Only part of the references are listed.Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Maui Hudson et al.
NATURE REVIEWS GENETICS (2020)
Sharing data for future research-engaging participants' views about data governance beyond the original project: a DIRECT Study
Nisha Shah et al.
GENETICS IN MEDICINE (2019)
Indigenous data, indigenous methodologies and indigenous data sovereignty
Maggie Walter et al.
INTERNATIONAL JOURNAL OF SOCIAL RESEARCH METHODOLOGY (2019)
Clinical Trial Participants' Views of the Risks and Benefits of Data Sharing
Michelle M. Mello et al.
NEW ENGLAND JOURNAL OF MEDICINE (2018)
Data sharing in clinical trials - practical guidance on anonymising trial datasets
Catriona Keerie et al.
TRIALS (2018)
A comparison of views regarding the use of de-identified data
Deborah Goodman et al.
TRANSLATIONAL BEHAVIORAL MEDICINE (2018)
Data Sharing in Psychology
Maryann E. Martone et al.
AMERICAN PSYCHOLOGIST (2018)
Data Access and Usage Practices Across a Cohort of Researchers at a Large Tertiary Pediatric Hospital: Qualitative Survey Study
Hoi Ki Kiki Ho et al.
JMIR MEDICAL INFORMATICS (2018)
Attitudinal, normative, and resource factors affecting psychologists' intentions to adopt an open data badge: An empirical analysis
Lindsey M. Harper et al.
INTERNATIONAL JOURNAL OF INFORMATION MANAGEMENT (2018)
Engaging Maori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities
Angela Beaton et al.
GENETICS IN MEDICINE (2017)
Data management plans: the missing perspective
Mary Williams et al.
JOURNAL OF BIOMEDICAL INFORMATICS (2017)
Data Sharing from Clinical Trials - A Research Funder's Perspective
Robert Kiley et al.
NEW ENGLAND JOURNAL OF MEDICINE (2017)
Attitudes towards Personal Genomics and Sharing of Genetic Data among Older Swiss Adults: A Qualitative Study
Laura Mahlmann et al.
PUBLIC HEALTH GENOMICS (2017)
The influence of journal submission guidelines on authors' reporting of statistics and use of open research practices
David Giofre et al.
PLOS ONE (2017)
Challenges in administrative data linkage for research
Katie Harron et al.
BIG DATA & SOCIETY (2017)
Identifying the Complex Position of Research Data and Data Sharing Among Researchers in Natural Science
Keiko Kurata et al.
SAGE OPEN (2017)
De-identified genomic data sharing: the research participant perspective
Deborah Goodman et al.
JOURNAL OF COMMUNITY GENETICS (2017)
A qualitative study of adolescents' understanding of biobanks and their attitudes toward participation, re-contact, and data sharing
Andrea M. Murad et al.
AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2017)
A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States
Nanibaa' A. Garrison et al.
GENETICS IN MEDICINE (2016)
Balancing Benefits and Risks of Immortal Data: Participants' Views of Open Consent in the Personal Genome Project
Oscar A. Zarate et al.
HASTINGS CENTER REPORT (2016)
Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
Mhairi Aitken et al.
BMC MEDICAL ETHICS (2016)
'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research
Pauline McCormack et al.
EUROPEAN JOURNAL OF HUMAN GENETICS (2016)
Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study
Karen Spencer et al.
JOURNAL OF MEDICAL INTERNET RESEARCH (2016)
Promises and pitfalls of data sharing in qualitative research
Alexander C. Tsai et al.
SOCIAL SCIENCE & MEDICINE (2016)
Badges to Acknowledge Open Practices: A Simple, Low-Cost, Effective Method for Increasing Transparency
Mallory C. Kidwell et al.
PLOS BIOLOGY (2016)
Comment: The FAIR Guiding Principles for scientific data management and stewardship
Mark D. Wilkinson et al.
SCIENTIFIC DATA (2016)
TE MATA IRA-FACES OF THE GENE Developing a cultural foundation for biobanking and genomic research involving Maori
Maui Hudson et al.
ALTERNATIVE-AN INTERNATIONAL JOURNAL OF INDIGENOUS PEOPLES (2016)
The what, why, and how of born-open data
Jeffrey N. Rouder
BEHAVIOR RESEARCH METHODS (2016)
The primary reasons behind data sharing, its wider benefits and how to cope with the realities of commercial data
Ross L. Tellam et al.
BMC GENOMICS (2015)
Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholders
Spencer G. Denny et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2015)
Sharing Research Data to Improve Public Health: A Funder Perspective
David Carr et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2015)
Sweat, Skepticism, and Uncharted Territory: A Qualitative Study of Opinions on Data Sharing Among Public Health Researchers and Research Participants in Mumbai, India
Ketaki Hate et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2015)
Perceived Benefits, Harms, and Views About How to Share Data Responsibly: A Qualitative Study of Experiences With and Attitudes Toward Data Sharing Among Research Staff and Community Representatives in Thailand
Phaik Yeong Cheah et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2015)
What Drives Academic Data Sharing?
Benedikt Fecher et al.
PLOS ONE (2015)
Estimating the reproducibility of psychological science
Alexander A. Aarts et al.
SCIENCE (2015)
Promoting an open research culture
B. A. Nosek et al.
SCIENCE (2015)
The Dunedin Multidisciplinary Health and Development Study: overview of the first 40 years, with an eye to the future
Richie Poulton et al.
SOCIAL PSYCHIATRY AND PSYCHIATRIC EPIDEMIOLOGY (2015)
Research data sharing: Developing a stakeholder-driven model for journal policies
Paul Sturges et al.
JOURNAL OF THE ASSOCIATION FOR INFORMATION SCIENCE AND TECHNOLOGY (2015)
Research participants' attitudes towards the confidentiality of genomic sequence information
Leila Jamal et al.
EUROPEAN JOURNAL OF HUMAN GENETICS (2014)
Data sharing policy design for consortia: challenges for sustainability
Jane Kaye et al.
GENOME MEDICINE (2014)
If We Share Data, Will Anyone Use Them? Data Sharing and Reuse in the Long Tail of Science and Technology
Jillian C. Wallis et al.
PLOS ONE (2013)
Balancing the Risks and Benefits of Genomic Data Sharing: Genome Research Participants' Perspectives
J. M. Oliver et al.
PUBLIC HEALTH GENOMICS (2012)
Inclusion of Residual Tissue in Biobanks: Opt-In or Opt-Out?
Noor A. A. Giesbertz et al.
PLOS BIOLOGY (2012)
Science or Art? How Aesthetic Standards Grease the Way Through the Publication Bottleneck but Undermine Science
Roger Giner-Sorolla
PERSPECTIVES ON PSYCHOLOGICAL SCIENCE (2012)
The re-identification risk of Canadians from longitudinal demographics
Khaled El Emam et al.
BMC MEDICAL INFORMATICS AND DECISION MAKING (2011)
Data sharing: not as simple as it seems
Neil Pearce et al.
ENVIRONMENTAL HEALTH (2011)
Data Sharing by Scientists: Practices and Perceptions
Carol Tenopir et al.
PLOS ONE (2011)
Who Shares? Who Doesn't? Factors Associated with Openly Archiving Raw Research Data
Heather A. Piwowar
PLOS ONE (2011)
Willingness to Share Research Data Is Related to the Strength of the Evidence and the Quality of Reporting of Statistical Results
Jelte M. Wicherts et al.
PLOS ONE (2011)
The Open Knowledge Foundation: Open Data Means Better Science
Jennifer C. Molloy
PLOS BIOLOGY (2011)
Feeling the Future: Experimental Evidence for Anomalous Retroactive Influences on Cognition and Affect
Daryl J. Bem
JOURNAL OF PERSONALITY AND SOCIAL PSYCHOLOGY (2011)
GLAD YOU ASKED: PARTICIPANTS' OPINIONS OF RE-CONSENT FOR DBGAP DATA SUBMISSION
Evette J. Ludman et al.
JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS (2010)
Public and Biobank Participant Attitudes toward Genetic Research Participation and Data Sharing
A. A. Lemke et al.
PUBLIC HEALTH GENOMICS (2010)
Public sharing of research datasets: A pilot study of associations
Heather A. Piwowar et al.
JOURNAL OF INFORMETRICS (2010)
The Treaty of Waitangi and Research Ethics in Aotearoa
Maui L. Hudson et al.
JOURNAL OF BIOETHICAL INQUIRY (2009)
Ethical Issues in Neuroimaging Health Research An IPA Study with Research Participants
Rachel L. Shaw et al.
JOURNAL OF HEALTH PSYCHOLOGY (2008)
Why most published research findings are false
JPA Ioannidis
PLOS MEDICINE (2005)
Share Paper
