3.9 Article

Adaptive Challenges and Family Support: Patient Self-Management during Treatment for Chronic Hepatitis C

Journal

NURSING SCIENCE QUARTERLY
Volume 34, Issue 4, Pages 405-412

Publisher

SAGE PUBLICATIONS INC
DOI: 10.1177/08943184211031602

Keywords

caregiving; chronic illness; qualitative approach

Categories

Funding

  1. National Institute of Nursing Research [NIH/NINR R21NR0134611and P30NR014139-0]

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This study explores a family's adaptive challenges and work during a family member's treatment, identifying themes including family adaptive challenges, patient-described aspects of family members' adaptive challenges, and family adaptive work. The adaptive leadership framework for chronic illness provides guidance for future family interventions.
The authors describe a family's adaptive challenges and adaptive work during a family member's treatment for Chronic Hepatitis C. We audiorecorded index and final clinical visits and interviewed participants (patients and providers) following the visits. We interviewed by telephone and reviewed medical records over the course of treatment. Transcripts were analyzed using directed content analysis. Three themes were identified: family adaptive challenges, patient-described aspects of family members' adaptive challenges, and family adaptive work. There were four subthemes related to family adaptive work. The adaptive leadership framework for chronic illness provided direction for future family intervention.

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