Related references
Note: Only part of the references are listed.Parent Perceptions of Infant Symptoms and Suffering and Associations With Distress Among Bereaved Parents in the NICU
Olivia E. Clark et al.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT (2021)
Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported Data
Chris Feudtner et al.
JAMA NETWORK OPEN (2021)
The Association of Perceived Social Support with Anxiety over Time in Parents of Children with Serious Illnesses
Jackelyn Y. Boyden et al.
JOURNAL OF PALLIATIVE MEDICINE (2020)
Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition: A cross-sectional study of caregiver-reported outcomes
Anna Collins et al.
PALLIATIVE MEDICINE (2020)
The REDCap consortium: Building an international community of software platform partners
Paul A. Harris et al.
JOURNAL OF BIOMEDICAL INFORMATICS (2019)
Impact of Race and Socioeconomic Status on Psychologic Outcomes in Childhood Cancer Patients and Caregivers
Logan H. Ramsey et al.
JOURNAL OF PEDIATRIC HEMATOLOGY ONCOLOGY (2019)
Marginalization: Conceptualizing patient vulnerabilities in the framework of social determinants of health-An integrative review
Foster Osei Baah et al.
NURSING INQUIRY (2019)
Financial burdens and mental health needs in families of children with congenital heart disease
Nancy McClung et al.
CONGENITAL HEART DISEASE (2018)
The Relationship Between Household Income and Patient-Reported Symptom Distress and Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study
Maya F. Ilowite et al.
CANCER (2018)
Financial Hardships Experienced by Cancer Survivors: A Systematic Review
Cheryl K. Altice et al.
JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE (2017)
Financial Hardships Experienced by Cancer Survivors: A Systematic Review
Cheryl K. Altice et al.
JNCI-JOURNAL OF THE NATIONAL CANCER INSTITUTE (2017)
Trajectory of Material Hardship and Income Poverty in Families of Children Undergoing Chemotherapy: A Prospective Cohort Study
Kira Bona et al.
PEDIATRIC BLOOD & CANCER (2016)
Association Between the Birth of an Infant With Major Congenital Anomalies and Subsequent Risk of Mortality in Their Mothers
Eyal Cohen et al.
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (2016)
The Indirect Effect of Positive Parenting on the Relationship Between Parent and Sibling Bereavement Outcomes After the Death of a Child
Adam T. Morris et al.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT (2016)
Financial and Social Hardships in Families of Children with Medical Complexity
Joanna Thomson et al.
JOURNAL OF PEDIATRICS (2016)
Parent Perspectives of Neonatal Intensive Care at the End-of-Life
Erin R. Currie et al.
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES (2016)
Child's symptom burden and depressive symptoms among caregivers of children with cancers: an argument for early integration of pediatric palliative care
Andrew Toyin Olagunju et al.
ANNALS OF PALLIATIVE MEDICINE (2016)
Prevalence and Impact of Financial Hardship among New England Pediatric Stem Cell Transplantation Families
Kira Bona et al.
BIOLOGY OF BLOOD AND MARROW TRANSPLANTATION (2015)
Early psychological reactions in parents of children with a life threatening illness within a pediatric hospital setting
F. Muscara et al.
EUROPEAN PSYCHIATRY (2015)
Charting the Territory: Children and families living with progressive life-threatening conditions
Harold Siden et al.
PAEDIATRICS & CHILD HEALTH (2015)
Pediatric complex chronic conditions classification system version 2: updated for ICD-10 and complex medical technology dependence and transplantation
Chris Feudtner et al.
BMC PEDIATRICS (2014)
Improving the Care of Children With Advanced Cancer by Using an Electronic Patient-Reported Feedback Intervention: Results From the PediQUEST Randomized Controlled Trial
Joanne Wolfe et al.
JOURNAL OF CLINICAL ONCOLOGY (2014)
Economic Impact of Advanced Pediatric Cancer on Families
Kira Bona et al.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT (2014)
Paediatric palliative care and the social determinants of health: Mitigating the impact of urban poverty on children with life-limiting illnesses
Laura Beaune et al.
PAEDIATRICS & CHILD HEALTH (2013)
Psychological Distress in Parents of Children With Advanced Cancer
Abby R. Rosenberg et al.
JAMA PEDIATRICS (2013)
Validity study of the K6 scale as a measure of moderate mental distress based on mental health treatment need and utilization
Judith J. Prochaska et al.
INTERNATIONAL JOURNAL OF METHODS IN PSYCHIATRIC RESEARCH (2012)
Unmeasured Costs of a Child's Death: Perceived Financial Burden, Work Disruptions, and Economic Coping Strategies Used by American and Australian Families Who Lost Children to Cancer
Veronica Dussel et al.
JOURNAL OF CLINICAL ONCOLOGY (2011)
Associations and costs of parental symptoms of psychiatric distress in a multi-diagnosis group of children with special needs
S. Thurston et al.
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH (2011)
Prevalence and Predictors of Parental Grief and Depression after the Death of a Child from Cancer
Maria C. McCarthy et al.
JOURNAL OF PALLIATIVE MEDICINE (2010)
Family Support in Pediatric Palliative Care: How Are Families Impacted by their Children's Illnesses?
Caprice A. Knapp et al.
JOURNAL OF PALLIATIVE MEDICINE (2010)
Gender imbalance in pediatric palliative care research samples
Mary Ellen Macdonald et al.
PALLIATIVE MEDICINE (2010)
Research electronic data capture (REDCap)-A metadata-driven methodology and workflow process for providing translational research informatics support
Paul A. Harris et al.
JOURNAL OF BIOMEDICAL INFORMATICS (2009)
Associations Between Psychological Distress, Learning, and Memory in Spouse Caregivers of Older Adults
Corey S. Mackenzie et al.
JOURNALS OF GERONTOLOGY SERIES B-PSYCHOLOGICAL SCIENCES AND SOCIAL SCIENCES (2009)
Cognitive functioning under stress: Evidence from informal caregivers of palliative patients
Corey S. Mackenzie et al.
JOURNAL OF PALLIATIVE MEDICINE (2007)
Psychometric evaluation and calibration of health-related quality of life item banks - Plans for the patient-reported outcomes measurement information system (PROMIS)
Bryce B. Reeve et al.
MEDICAL CARE (2007)
Daily living with distress and enrichment: The moral experience of families with ventilator-assisted children at home
FA Carnevale et al.
PEDIATRICS (2006)
Care-related distress:: A nationwide study of parents who lost their child to cancer
U Kreicbergs et al.
JOURNAL OF CLINICAL ONCOLOGY (2005)
Screening for serious mental illness in the general population
RC Kessler et al.
ARCHIVES OF GENERAL PSYCHIATRY (2003)
The performance of the K6 and K10 screening scales for psychological distress in the Australian National Survey of Mental Health and Well-Being
TA Furukawa et al.
PSYCHOLOGICAL MEDICINE (2003)
Disease-related distress in parents of children with cancer at various stages after the time of diagnosis
K Boman et al.
ACTA ONCOLOGICA (2003)
Short screening scales to monitor population prevalences and trends in non-specific psychological distress
RC Kessler et al.
PSYCHOLOGICAL MEDICINE (2002)
Predictors of distress in parents of children with cancer: A prospective study
P Sloper
JOURNAL OF PEDIATRIC PSYCHOLOGY (2000)
Share Paper
