Journal
BMC GERIATRICS
Volume 21, Issue 1, Pages -Publisher
BMC
DOI: 10.1186/s12877-021-02153-6
Keywords
Informal caregiver; Caregiver burnout; Caregiver stress; Community-dwelling older adult; Dementia; Ageing-in-place
Categories
Funding
- Worldwide Universities Network Research Development Fund and Research Grant Committee Theme-based Research Grant [T32-102/14-N]
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This study investigated caregiver burnout among caregivers of community-dwelling older people with dementia in Hong Kong (HK), China, and New Zealand (NZ). The study found differences in contributing factors to burnout between HK and NZ, but also identified common factors such as care-recipient behavioral problems and primary caregiver being a spouse. Allied-health services were found to protect caregivers from burnout in HK.
BackgroundInformal caregiving for people with dementia can negatively impact caregivers' health. In Asia-Pacific regions, growing dementia incidence has made caregiver burnout a pressing public health issue. A cross-sectional study with a representative sample helps to understand how caregivers experience burnout throughout this region. We explored the prevalence and contributing factors of burnout of caregivers of community-dwelling older people with dementia in Hong Kong (HK), China, and New Zealand (NZ) in this study.MethodsAnalysis of interRAI Home Care Assessment data for care-recipients (aged >= 65 with Alzheimer's disease/other dementia) who had applied for government-funded community services and their caregivers was conducted. The sample comprised 9976 predominately Chinese in HK and 16,725 predominantly European in NZ from 2013 to 2016. Caregiver burnout rates for HK and NZ were calculated. Logistic regression was used to determine the adjusted odds ratio (AOR) of the significant factors associated with caregiver burnout in both regions.ResultsCaregiver burnout was present in 15.5 and 13.9% of the sample in HK and NZ respectively. Cross-regional differences in contributing factors to burnout were found. Care-recipients' ADL dependency, fall history, and cohabitation with primary caregiver were significant contributing factors in NZ, while primary caregiver being child was found to be significant in HK. Some common contributing factors were observed in both regions, including care-recipients having behavioural problem, primary caregiver being spouse, providing activities-of-daily-living (ADL) care, and delivering more than 21h of care every week. In HK, allied-health services (physiotherapy, occupational therapy and speech therapy) protected caregiver from burnout. Interaction analysis showed that allied-health service attenuates the risk of burnout contributed by care-recipient's older age (85+), cohabitation with child, ADL dependency, mood problem, and ADL care provision by caregivers.ConclusionsThis study highlights differences in service delivery models, family structures and cultural values that may explain the cross-regional differences in dementia caregiving experience in NZ and HK. Characteristics of caregiving dyads and their allied-health service utilization are important contributing factors to caregiver burnout. A standardized needs assessment for caregivers could help policymakers and healthcare practitioners to identify caregiving dyads who are at risk of burnout and provide early intervention.
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