4.7 Article

Patients' Experiences of a Nurse-Led, Home-Based Heart Failure Self-management Program: Findings From a Qualitative Process Evaluation

Journal

JOURNAL OF MEDICAL INTERNET RESEARCH
Volume 23, Issue 4, Pages -

Publisher

JMIR PUBLICATIONS, INC
DOI: 10.2196/28216

Keywords

self-care; psychosocial educational; nurse-led; mHealth; self-management; heart failure; process evaluation; nursing; mobile phone

Funding

  1. Health Services Research Grant of the National Medical Research Council in Singapore [NMRC/HSRG/0064/2016]

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This study explored participants' perspectives on a nurse-led, home-based heart failure self-management program in Singapore through qualitative interviews. Six themes emerged from the interviews, categorized as intervention structure, process, and outcome. Participants perceived the program positively in terms of manageability, areas for improvement, benefits of visiting, personal accountability, knowledge and skills gained, and self-efficacy in cardiac care.
Background: Heart failure (HF) is a major public health problem that places a significant disease burden on society. Self-care is important in the management of HF because it averts disease progression and reduces the number of hospitalizations. Effective nursing interventions promote HF self-care. Objective: This study aims to explore participants' perspectives on a nurse-led, home-based heart failure self-management program (HOM-HEMP) in a randomized controlled trial conducted in Singapore to gain insight into the effectiveness of the study intervention. Methods: A descriptive, qualitative approach was used. English- or Chinese-speaking participants from the intervention arms were recruited through a purposive sampling method from January 2019 to July 2019. Individual, face-to-face, semistructured interviews were conducted with 11 participants. All interviews were audio recorded and transcribed verbatim, with the participant identifiers omitted to ensure confidentiality. The thematic analysis approach was used to identify, analyze, and report patterns (themes) within the data. Results: A total of six themes emerged from the process evaluation interviews and were categorized according to the Donabedian structure-process-outcome framework as intervention structure, intervention process, and intervention outcome. These six themes were manageability of the intervention, areas for improvement, benefits of visiting, personal accountability in self-care, empowered with knowledge and skills in self-care after the intervention, and increased self-efficacy in cardiac care. Conclusions: The findings of the process evaluation provided additional information on participants' perceptions and experiences with the HOM-HEMP intervention. Although a home visit may be perceived as resource intensive, it remains to be the preferred way of engagement for most patients. Nurses play an important role in promoting HF self-care. The process of interaction with the patient can be an important process for empowering self-care behavior changes.

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