4.5 Article

Needs of Dementia Family Caregivers in Spain During the COVID-19 Pandemic

Journal

JOURNAL OF ALZHEIMERS DISEASE
Volume 80, Issue 2, Pages 533-537

Publisher

IOS PRESS
DOI: 10.3233/JAD-201430

Keywords

Alzheimer's disease; burden; caregivers; confinement; COVID-19; dementia; family careers; needs; pandemic

Categories

Funding

  1. Dementia Group of the Navarra Society of Geriatrics and Gerontology
  2. Alzheimer's Family Association of Navarra (AFAN)

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The survey revealed that caregivers of people with dementia experienced psychological issues during the pandemic, and felt lacking in support when dealing with challenging behaviors or providing meaningful activities. An innovative supportive approach is needed to ensure the continuity of quality care for dementia patients and their family caregivers in a post-pandemic reality.
We explored the experience from caregivers of people with dementia (PwD) during mandatory confinement due to the COVID-19 pandemic in Spain. An online survey, which studied the perceptions of the main problems and consequences experienced during confinement, was answered by 106 family caregivers of PwD. Results showed that family caregivers of PwD experienced psychological problems, like anxiety, mood, sleep, or eating disorders during confinement and felt less supported when they had to handle challenging behaviors or offer meaningful activities. An innovative multi-tiered supportive approach is needed which considers a post-pandemic reality and ensures the continuity of quality care for PwD and their family careers.

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