4.4 Article

The Effect of a Complementary Therapy Education Seminar on Support Persons of Individuals with Cancer

Journal

JOURNAL OF ALTERNATIVE AND COMPLEMENTARY MEDICINE
Volume 27, Issue 4, Pages 365-372

Publisher

MARY ANN LIEBERT, INC
DOI: 10.1089/acm.2020.0443

Keywords

complementary and alternative medicine; support persons; oncology; treatment decision making; decision-making conflict; patient education

Funding

  1. CAMEO research program
  2. John and Lotte Hecht Memorial Foundation

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The study showed that educating support persons through seminars can significantly increase their knowledge about complementary therapy and improve their confidence in decision-making. Most support persons indicated they would continue seeking information about complementary therapy online, and there was a significant decrease in decisional conflict while distress related to decisions remained unchanged.
Objectives: Complementary therapy (CT) use is prevalent among individuals living with cancer, who often consult family and friends (i.e., support persons) in making decisions about CT. This study examines the effect of an education seminar for adult cancer patients and support persons on the support persons' use, knowledge, and decision-making processes related to CT. Design: A patient education seminar that included support persons was developed and evaluated as part of a CT decision support research program. Survey data were collected before and after the education seminar to examine its impact on support persons' knowledge and use of CT, as well as their engagement in the CT decision-making process. Setting: The study was conducted in Western Canada. Subjects: 62 adult support persons. Interventions: Participants attended a 4-h CT education seminar at one in four provincial cancer centers. The seminar provided recommendations regarding how to make informed decisions about CT, where to find credible information, and key issues to consider to avoid potential risks of CT use. The evidence related to popular CT was also reviewed. Outcome Measures: The primary outcome was support persons' CT knowledge. Secondary outcomes included CT use, information-seeking behavior, decision self-efficacy, decision conflict, and distress. Results: A significant increase in support persons' CT knowledge was observed, as well as improved confidence in CT decision making. There was no significant difference in participants' CT use following the education seminar. Most indicated they would continue to locate information about CT using the Internet. A significant decrease in support persons' decisional conflict was reported; however, there were no significant change in distress related to CT decision making. Conclusions: This study demonstrates the importance of including support persons in patient education related to CT and the positive impact on their knowledge and treatment decision-making processes. No significant change in CT use, information seeking behavior and distress related to CT decisions, however, was observed in the study.

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