4.5 Editorial Material

Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond

Journal

MOLECULAR AUTISM
Volume 11, Issue 1, Pages -

Publisher

BMC
DOI: 10.1186/s13229-020-00365-y

Keywords

Autism; SARS-CoV-2 virus; COVID-19; Pandemic; Resilience; Telehealth; Health services; Equity

Funding

  1. National Institutes of Mental Health
  2. Canadian Institutes of Health Research (CIHR)
  3. Cundill Centre for Child and Youth Depression at the Centre for Addiction and Mental Health (CAMH)
  4. CIHR Sex and Gender Science Chair
  5. Women's Xchange
  6. Innovation Fund of the Alternative Funding Plan for the Academic Health Sciences Centres of Ontario
  7. Ontario Brain Institute via the Province of Ontario Neurodevelopmental Disorders (POND) Network
  8. O'Brien Scholars Program within the Child and Youth Mental Health Collaborative at CAMH, Toronto
  9. O'Brien Scholars Program within the Child and Youth Mental Health Collaborative at Hospital for Sick Children, Toronto
  10. Academic Scholars Award from the Department of Psychiatry, University of Toronto
  11. Slaight Family Child via the CAMH Foundation
  12. Brain Canada
  13. CIHR
  14. CAMH Foundation
  15. Patient-Centered Outcomes Research Institute (PCORI)
  16. US National Institutes of Health (NIH)
  17. Patsy and Jamie Anderson Chair in Child and Youth Mental Health
  18. NIH
  19. Youth Mental Health Innovation Fund via the CAMH Foundation

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The new coronavirus disease (COVID-19) pandemic is changing how society operates. Environmental changes, disrupted routines, and reduced access to services and social networks will have a unique impact on autistic individuals and their families and will contribute to significant deterioration in some. Access to support is crucial to address vulnerability factors, guide adjustments in home environments, and apply mitigation strategies to improve coping. The current crisis highlights that our regular care systems are not sufficient to meet the needs of the autism communities. In many parts of the world, people have shifted to online school and increased use of remote delivery of healthcare and autism supports. Access to these services needs to be increased to mitigate the negative impact of COVID-19 and future epidemics/pandemics. The rapid expansion in the use of telehealth platforms can have a positive impact on both care and research. It can help to address key priorities for the autism communities including long waitlists for assessment and care, access to services in remote locations, and restricted hours of service. However, system-level changes are urgently needed to ensure equitable access and flexible care models, especially for families and individuals who are socioeconomically disadvantaged. COVID-19 mandates the use of technology to support a broader range of care options and better meet the diverse needs of autistic people and their families. It behooves us to use this crisis as an opportunity to foster resilience not only for a given individual or their family, but also the system: to drive enduring and autism-friendly changes in healthcare, social systems, and the broader socio-ecological contexts.

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