Journal
PATIENT EDUCATION AND COUNSELING
Volume 104, Issue 4, Pages 903-910Publisher
ELSEVIER IRELAND LTD
DOI: 10.1016/j.pec.2020.08.013
Keywords
Financial burden; Financial toxicity; Patient perspectives; Universal health system; Cancer care; Cancer survivors
Funding
- Canadian Centre for Applied Research in Cancer Control
- Cancer Care Ontario
- McMaster University Arts Council Research Grant
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Despite being in a universal healthcare system, a significant number of cancer patients still face financial struggles and resulting emotional distress. Themes include incurred costs, reduced income, impact of financial difficulties, and coping with financial distress. Regular monitoring of financial and emotional distress can help identify those in need of interventions.
Objective: To seek understanding of financial burden from the perspective of cancer patients, in a largely publicly funded health care system, about the impacts of financial hardship on their lives. Methods: A qualitative descriptive analysis was completed for comments written in response to an open-ended, free-text item on a pan-Canadian survey about costs incurred during cancer treatment and follow-up and the impact of financial difficulties. Results: A total 378 of the 901 survey respondents provided comments about their financial situations during cancer treatment. Forty percent of those individuals indicated experiencing financial struggles and resulting emotional distress. Themes were identified as follows: cost incurred, reduced income and reserves, impact of costs and reduced financial income/reserve, and managing financial distress. Conclusion: Even within a universal health care system, a significant proportion of cancer patients experienced financial struggle and resulting emotional distress. Practice implications: Regular monitoring of financial and emotional distress and its sources can facilitate the identification of those who are experiencing financial difficulty and the provision of appropriate interventions. (C) 2020 Elsevier B.V. All rights reserved.
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