4.8 Review

Privacy challenges and research opportunities for genomic data sharing

Related references

Note: Only part of the references are listed.
Article Multidisciplinary Sciences

Estimating the success of re-identifications in incomplete datasets using generative models

Luc Rocher et al.

NATURE COMMUNICATIONS (2019)

Article Medicine, General & Internal

The All of Us Research Program

NEW ENGLAND JOURNAL OF MEDICINE (2019)

Editorial Material Medicine, General & Internal

Is It Ethical to Use Genealogy Data to Solve Crimes?

Benjamin E. Berkman et al.

ANNALS OF INTERNAL MEDICINE (2018)

Article Medicine, General & Internal

Direct-to-Consumer Testing 2.0: Emerging Models of Direct-to-Consumer Genetic Testing

Megan A. Allyse et al.

MAYO CLINIC PROCEEDINGS (2018)

Article Biotechnology & Applied Microbiology

Secure genome-wide association analysis using multiparty computation

Hyunghoon Cho et al.

NATURE BIOTECHNOLOGY (2018)

Editorial Material Multidisciplinary Sciences

Genealogy databases and the future of criminal investigation

Natalie Ram et al.

SCIENCE (2018)

Article Multidisciplinary Sciences

Identity inference of genomic data using long-range familial searches

Yaniv Erlich et al.

SCIENCE (2018)

Article Multidisciplinary Sciences

Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States

Shuang Wang et al.

ANNALS OF THE NEW YORK ACADEMY OF SCIENCES (2017)

Article Genetics & Heredity

All your data (effectively) belong to us: data practices among direct-to-consumer genetic testing firms

Linnea I. Laestadius et al.

GENETICS IN MEDICINE (2017)

Article Computer Science, Information Systems

Inference Attacks against Kin Genomic Privacy

Erman Ayday et al.

IEEE SECURITY & PRIVACY (2017)

Article Multidisciplinary Sciences

Identification of individuals by trait prediction using whole-genome sequencing data

Christoph Lippert et al.

PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES OF THE UNITED STATES OF AMERICA (2017)

Article Computer Science, Information Systems

Quantifying Interdependent Risks in Genomic Privacy

Mathias Humbert et al.

ACM TRANSACTIONS ON PRIVACY AND SECURITY (2017)

Article Genetics & Heredity

Efficient and secure outsourcing of genomic data storage

Joao Sa Sousa et al.

BMC MEDICAL GENOMICS (2017)

Article Biochemical Research Methods

Realizing privacy preserving genome-wide association studies

Sean Simmons et al.

BIOINFORMATICS (2016)

Article Biotechnology & Applied Microbiology

Company disclosure and consumer perceptions of the privacy implications of direct-to-consumer genetic testing

Emily Christofides et al.

NEW GENETICS AND SOCIETY (2016)

Article Biochemistry & Molecular Biology

Enabling Privacy-Preserving GWASs in Heterogeneous Human Populations

Sean Simmons et al.

CELL SYSTEMS (2016)

Article Genetics & Heredity

Ethical issues in consumer genome sequencing: Use of consumers' samples and data

Emilia Niemiec et al.

APPLIED AND TRANSLATIONAL GENOMICS (2016)

Article Computer Science, Theory & Methods

Privacy in the Genomic Era

Muhammad Naveed et al.

ACM COMPUTING SURVEYS (2015)

Article Genetics & Heredity

Privacy Risks from Genomic Data-Sharing Beacons

Suyash S. Shringarpure et al.

AMERICAN JOURNAL OF HUMAN GENETICS (2015)

Article Medical Informatics

Privacy-preserving GWAS analysis on federated genomic datasets

Scott D. Constable et al.

BMC MEDICAL INFORMATICS AND DECISION MAKING (2015)

Article Medical Informatics

FORESEE: Fully Outsourced secuRe gEnome Study basEd on homomorphic Encryption

Yuchen Zhang et al.

BMC MEDICAL INFORMATICS AND DECISION MAKING (2015)

Review Computer Science, Interdisciplinary Applications

Privacy preserving processing of genomic data: A survey

Mete Akgun et al.

JOURNAL OF BIOMEDICAL INFORMATICS (2015)

Proceedings Paper Computer Science, Theory & Methods

GenoGuard: Protecting Genomic Data against Brute-Force Attacks

Zhicong Huang et al.

2015 IEEE SYMPOSIUM ON SECURITY AND PRIVACY SP 2015 (2015)

Proceedings Paper Engineering, Electrical & Electronic

Privacy-Preserving Statistical Analysis by Exact Logistic Regression

David A. duVerle et al.

2015 IEEE SECURITY AND PRIVACY WORKSHOPS (SPW) (2015)

Proceedings Paper Computer Science, Information Systems

Private Computation on Encrypted Genomic Data

Kristin Lauter et al.

PROGRESS IN CRYPTOLOGY - LATINCRYPT 2014 (2015)

Article Ethics

Protecting Posted Genes: Social Networking and the Limits of GINA

Sandra Soo-Jin Lee et al.

AMERICAN JOURNAL OF BIOETHICS (2014)

Review Genetics & Heredity

Exploring pathways to trust: a tribal perspective on data sharing

Rosalina James et al.

GENETICS IN MEDICINE (2014)

Article Biochemistry & Molecular Biology

Identifying genetic relatives without compromising privacy

Dan He et al.

GENOME RESEARCH (2014)

Article Computer Science, Interdisciplinary Applications

Scalable privacy-preserving data sharing methodology for genome-wide association studies

Fei Yu et al.

JOURNAL OF BIOMEDICAL INFORMATICS (2014)

Review Genetics & Heredity

Routes for breaching and protecting genetic privacy

Yaniv Erlich et al.

NATURE REVIEWS GENETICS (2014)

Article Biochemistry & Molecular Biology

Redefining Genomic Privacy: Trust and Empowerment

Yaniv Erlich et al.

PLOS BIOLOGY (2014)

Article Biochemical Research Methods

A new way to protect privacy in large-scale genome-wide association studies

Liina Kamm et al.

BIOINFORMATICS (2013)

Article Multidisciplinary Sciences

Identifying Personal Genomes by Surname Inference

Melissa Gymrek et al.

SCIENCE (2013)

Editorial Material Biotechnology & Applied Microbiology

23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent

Megan Allyse

TRENDS IN BIOTECHNOLOGY (2013)

Article Primary Health Care

Dynamic consent in the digital age of biology: online initiatives and regulatory considerations

Richman Wee et al.

JOURNAL OF PRIMARY HEALTH CARE (2013)

Article Environmental Sciences

Conducting Research with Tribal Communities: Sovereignty, Ethics, and Data-Sharing Issues

Anna Harding et al.

ENVIRONMENTAL HEALTH PERSPECTIVES (2012)

Article Genetics & Heredity

To share or not to share: A randomized trial of consent for data sharing in genome research

Amy L. McGuire et al.

GENETICS IN MEDICINE (2011)

Article Multidisciplinary Sciences

A decade's perspective on DNA sequencing technology

Elaine R. Mardis

NATURE (2011)

Article Genetics & Heredity

Assessing the Privacy Risks of Data Sharing in Genomics

C. Heeney et al.

PUBLIC HEALTH GENOMICS (2011)

Editorial Material Multidisciplinary Sciences

On the Future of Genomic Data

Scott D. Kahn

SCIENCE (2011)

Review Genetics & Heredity

APPLICATIONS OF NEXT-GENERATION SEQUENCING Sequencing technologies - the next generation

Michael L. Metzker

NATURE REVIEWS GENETICS (2010)

Editorial Material Medicine, General & Internal

The Havasupai Indian Tribe Case -- Lessons for Research Involving Stored Biologic Samples.

Michelle M. Mello et al.

NEW ENGLAND JOURNAL OF MEDICINE (2010)

Article Genetics & Heredity

Web-Based, Participant-Driven Studies Yield Novel Genetic Associations for Common Traits

Nicholas Eriksson et al.

PLOS GENETICS (2010)

Letter Biochemistry & Molecular Biology

On Jim Watson's APOE status: genetic information is hard to hide

Dale R. Nyholt et al.

EUROPEAN JOURNAL OF HUMAN GENETICS (2009)

Article Genetics & Heredity

Genomic privacy and limits of individual detection in a pool

Sriram Sankararaman et al.

NATURE GENETICS (2009)

Article Medicine, General & Internal

Disclosure of APOE Genotype for Risk of Alzheimer's Disease

Robert C. Green et al.

NEW ENGLAND JOURNAL OF MEDICINE (2009)

Article Multidisciplinary Sciences

The complete genome of an individual by massively parallel DNA sequencing

David A. Wheeler et al.

NATURE (2008)

Article Computer Science, Information Systems

An evaluation of the current state of genomic data privacy protection technology and a roadmap for the future

BA Malin

JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION (2005)

Article Computer Science, Interdisciplinary Applications

How (not) to protect genomic data privacy in a distributed network: using trail re-identification to evaluate and design anonymity protection systems

B Malin et al.

JOURNAL OF BIOMEDICAL INFORMATICS (2004)

Article Computer Science, Artificial Intelligence

k-anonymity:: A model for protecting privacy

L Sweeney

INTERNATIONAL JOURNAL OF UNCERTAINTY FUZZINESS AND KNOWLEDGE-BASED SYSTEMS (2002)

Article Environmental Sciences

Holistic risk-based environmental decision making: A native perspective

M Arquette et al.

ENVIRONMENTAL HEALTH PERSPECTIVES (2002)