Journal
REHABILITATION NURSING
Volume 46, Issue 2, Pages 73-82Publisher
LIPPINCOTT WILLIAMS & WILKINS
DOI: 10.1097/rnj.0000000000000261
Keywords
Behavior; child; self-management; spina dysraphism
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This study explored Korean parents' perceptions of self-management behaviors for children with spina bifida through in-depth interviews. The findings showed that parental perceptions were classified into risk factors hindering self-management behaviors and protective factors accelerating them, further into child, parent, and school-related factors. Promoting self-management behaviors in children with spina bifida requires reducing risk factors and promoting protective factors across cultural dimensions.
Purpose This study aimed to explore parents' perceptions of self-management behaviors for their children with spina bifida (SB). Design Qualitative method. Methods In-depth interviews were conducted with nine Korean parents of children with SB. The data were analyzed using the content analysis method. Findings Parental perceptions of the experiences of self-management behaviors in children with SB were classified into risk factors that hinder self-management behaviors and protective factors that accelerate them. Each category of factors was then further classified into child-, parent-, and school-related factors. Conclusions To promote self-management behaviors in children with SB, reducing risk factors and promoting protective factors considering child, family, and school dimensions based on cultural differences are necessary.
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