4.4 Article

Managing to learn bimanual activities - experiences from children and adolescents with cerebral palsy - a qualitative analysis

Journal

DISABILITY AND REHABILITATION
Volume 44, Issue 3, Pages 395-403

Publisher

TAYLOR & FRANCIS LTD
DOI: 10.1080/09638288.2020.1768305

Keywords

Adolescents; cerebral palsy; child; hand; learning; qualitative research

Categories

Funding

  1. Petter Silfverskiold Memorial Foundation
  2. Swedish National Association for Disabled Children and Young People - the RBU Research Foundation
  3. Linnea and Josef Carlsson Foundation
  4. Swedish Association of Occupational Therapists Scholarship Foundation
  5. Norrbacka-Eugenia Foundation
  6. Linnea & Josef Carlsson Foundation
  7. Bertha and Felix Neubergh Memorial Foundation
  8. Fredrik and Ingrid Thuring Memorial Foundation

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The study aims to explore the experiences of children and adolescents with unilateral spastic cerebral palsy when it comes to learning and dealing with activities requiring bimanual use. The results suggest that they have to adapt to a changing context and their own developing skills in order to learn these activities.
Purpose:Children and adolescents with cerebral palsy often have impaired hand function. This makes it difficult for them to deal with everyday activities. The aim of the study was to explore the experiences of children and adolescents with unilateral spastic cerebral palsy when it comes to learning and dealing with activities requiring bimanual use. Method:Ten participants, attending mainstream schools, with unilateral spastic cerebral palsy (10-18 years, MACS-level I-III) took part in semi-structured interviews. Qualitative analysis with verbatim transcripts were analysed using a Grounded Theory approach. Results:The learning of bimanual activities was described as a process taking place in interaction with the dynamics of everyday situations. Five categories describing the participants experiences emerged: Reaching a point where you want to learn, Awareness and acceptance of your own abilities, Dealing with the boundaries of the disability, Dealing with the impact of people around you and Strategies for learning. A multi-dimensional theory was derived, summarising how the participants learned bimanual activities in daily life. Conclusions:Children and adolescents with unilateral spastic cerebral palsy express that the process of learning bimanual activities can only take place when it fits in with life as it unfolds. Thus, they have to adapt to a changing context and their own developing skills.

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