4.5 Article

Rural cancer survivors' health information needs post-treatment

Journal

PATIENT EDUCATION AND COUNSELING
Volume 103, Issue 8, Pages 1606-1614

Publisher

ELSEVIER IRELAND LTD
DOI: 10.1016/j.pec.2020.02.034

Keywords

Cancer survivorship; Rural; Health information needs; Post-treatment

Funding

  1. National Cancer Institute (NCI) of the National Institutes of Health [R03CA157211]
  2. NCI Cancer Center Support Grant [P30 CA012197]
  3. NCI training grant [R25CA122061]

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Objective: This study describes the most common cancer -related health information needs among rural cancer survivors and characteristics associated with reporting more information needs. Methods: Rural breast, prostate, and colorectal cancer survivors, two to five years post -diagnosis, identi fied from an institutional cancer registry, completed a mailed/telephone-administered survey. Respondents were asked about 23 health information needs in eight domains (tests and treatment, side effects and symptoms, health promotion, fertility, interpersonal, occupational, emotional, and insurance). Poisson regression models were used to assess relationships between number of health information needs and demographic and cancer characteristics. Results: Participants (n = 170) reported an average of four health information needs, with the most common domains being: side effects and symptoms (58 %), health promotion (54 %), and tests and treatment (41 %). Participants who were younger (compared to 5 -year increase, rate ratio [RR] = 1.11, 95 % CI = 1.02-1.21), ethnic minority (RR = 1.89, 95 % CI = 1.17-3.06), less educated (RR = 1.49, 95 % CI = 1.00-2.23), and financially stressed (RR = 1.87, 95 % CI = 1.25-2.81) had a greater number of information needs. Conclusions: Younger, ethnic minority, less educated, and financially strained rural survivors have the greatest need for informational support. Practice Implications: The provision of health information for rural cancer survivors should consider type of cancer, treatments received, and sociocultural differences to tailor information provided.

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