4.7 Editorial Material

Sharing Patient Data Without Exploiting Patients

Journal

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION
Volume 323, Issue 6, Pages 505-506

Publisher

AMER MEDICAL ASSOC
DOI: 10.1001/jama.2019.22354

Keywords

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Funding

  1. Deloitte
  2. Pfizer
  3. American College of Radiology
  4. Oncology Society of New Jersey, Good Shepherd Community Care, Remedy Partners
  5. Kaiser Permanente Virtual Medicine, Wallace H. Coulter Foundation
  6. Lake Nona Institute, Allocation, Philadelphia Chamber of Commerce, Blue Cross Blue Shield Minnesota
  7. Futures Without Violence, Children's Hospital of Pennsylvania, Washington State Hospital Association
  8. Association of Academic Health Centers
  9. Roivant Sciences Inc, Medical Specialties Distributors LLC
  10. Grifols Foundation
  11. Medical Home Network
  12. United Health Group

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This Viewpoint uses the framework of exploitation, an unequal sharing of benefits and harms between parties in an agreement, to highlight the ethical risks inherent in data-sharing partnerships between health systems and for-profit technology companies and to explore potential strategies for addressing those risks.

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