4.4 Article

Moving from stigmatization toward competent interdisciplinary care of patients with functional neurological disorders: focus group interviews

Journal

DISABILITY AND REHABILITATION
Volume 43, Issue 9, Pages 1237-1246

Publisher

TAYLOR & FRANCIS LTD
DOI: 10.1080/09638288.2019.1661037

Keywords

Conversion disorder; dissociative disorder; focus groups; interdisciplinary team; clinical knowledge; stigma

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This study examines the facilitating and inhibiting factors in inpatient care of patients with functional neurological disorders experienced by interdisciplinary healthcare teams. The results highlight the importance of continuity in care and protecting patients' self-image.
Purpose: To explore facilitating and inhibiting factors in the inpatient care of patients with functional neurological disorders as experienced by interdisciplinary teams of healthcare professionals. Method: Qualitative focus group interviews were conducted with 18 healthcare professionals of various professions. Data were analyzed using qualitative content analysis with inductive coding of data. Results: Two main categories were formulated: (a) Giving the diagnosis to patients - a moment of fragility and opportunities, and (b) Organization of care - ensuring the continuity and protecting patients' self-image. One overarching theme tied the two categories together: Establishing coherence in the inpatient trajectory - moving from stigmatization toward competent care. Coherence and steadiness in care was a prerequisite for transparency in goalsetting and for designating the responsibilities of individual healthcare professionals. Stigma and having clinical experience and knowledge of functional neurological disorders, as two counter-factors, influenced the extent to which this was achieved. Examples of facilitating factors for enhancing competent care were documentation of symptoms, effective ways of passing on clinical information, education, professional dialog, and organizational support. Discussion: To nurture competent care, guidelines, structured educational initiatives and other supportive actions should be promoted. We provide ideas for the next logical steps for clinical practice and research.

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