Journal
SOUTHERN MEDICAL JOURNAL
Volume 112, Issue 3, Pages 190-197Publisher
LIPPINCOTT WILLIAMS & WILKINS
DOI: 10.14423/SMJ.0000000000000950
Keywords
care coordination; medical home; pediatric-to adult-transition; sickle cell disease; transition of care
Categories
Funding
- NHLBI NIH HHS [U54 HL090516, R18 HL112737, U10 HL083732] Funding Source: Medline
- NIDA NIH HHS [R36 DA046671] Funding Source: Medline
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Objective: More effective transitions and transfers of young people with sickle cell disease (SCD) into the adult healthcare setting is a focus of both primary care and specialty care medical organizations. Effective transition and transfer requires six core elements: establishing a policy, tracking progress, administering transition readiness assessments, planning for adult care, transferring to adult care, and integrating into an adult practice. We developed a program using these six core elements. The objective of our report was to assess the development and implementation of this program. Methods: We used the six core elements to develop and implement a program at Virginia Commonwealth University for children and adolescents with SCD to transition to adult health care. Results: We assessed individuals' differences by age and grade, their independent living skills, their feelings about moving to adult care; tallied and analyzed several assessment scales; and assessed transfer success and patient retention. Conclusions: The principles and lessons we learned in developing and implementing this program over 5 years, accompanied by caring, flexible, and dedicated care team members, often can overcome even severe barriers to care transitions.
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