4.7 Article

Community perceptions related to brain donation: Evidence for intervention

Journal

ALZHEIMERS & DEMENTIA
Volume 15, Issue 2, Pages 267-272

Publisher

ELSEVIER SCIENCE INC
DOI: 10.1016/j.jalz.2018.09.005

Keywords

Alzheimer's; Dementia; Brain donation; Community health worker; Public health; Epidemiology; Research perceptions

Funding

  1. National Institutes of Health's Clinical and Translational Science Awards program [UL1TR001427]
  2. 1Florida Alzheimer's Disease Research Center - National Institute on Aging [NIH P50 AG047266]
  3. Florida Department of Health-Ed and Ethel Moore Alzheimer's Disease Research Program [6AZ05]
  4. Department of Epidemiology
  5. College of Medicine
  6. College of Public Health and Health Professions
  7. Graduate School Fellowship at the University of Florida

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Introduction: Research progress on neurocognitive disorders requires donation of both healthy and diseased brains. Here, we describe attitudes toward brain donation among a large community sample in Florida. Methods: HealthStreet, a community engagement program at the University of Florida, used community health workers to assess community attitudes toward research participation, including brain donation. Results: Over 60% of people, primarily Caucasian and employed, indicated that they would be likely or somewhat likely to donate their brain for research. Those who would be willing to donate were also more likely to be willing to participate in other research studies and to have participated in research. Discussion: Brain donation will add to the science of disorders of aging, including accurate diagnoses and validation of in vivo biomarkers. Increasing willingness to donate is a first step toward donation. Community populations are willing; community health workers can educate others about the need for this initiative in communities. (C) 2018 the Alzheimer's Association. Published by Elsevier Inc. All rights reserved.

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