Journal
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
Volume 28, Issue 2, Pages 135-140Publisher
ELSEVIER SCIENCE INC
DOI: 10.1016/j.pedn.2012.06.002
Keywords
Autism; Qualitative research method; Health care professionals
Categories
Funding
- Manitoba Health Research Council
- Foundation for Registered Nurses of Manitoba Inc
- Child Health Graduate Studentship
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The lived experience of parents of children with autism living in a rural area was explored through a phenomenological approach. Twenty-eight parents from multiple rural communities participated in semi-structured interviews. Van Manen's (1990) selective highlighting approach was used to isolate thematic statements of the experience. Findings revealed that autism became centered within the family thereby affecting how parents parented. Parenting now included: (a) multiple roles; (b) an intense focus on their child's needs; and (c) finding a balance. Although parents acquired multiple roles and faced many unmet needs, parents were determined to strive for balance within the family. (C) 2013 Elsevier Inc. All rights reserved.
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