Journal
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
Volume 28, Issue 1, Pages 55-63Publisher
ELSEVIER SCIENCE INC
DOI: 10.1016/j.pedn.2011.12.006
Keywords
Recombinant human growth hormone; Growth hormone deficiency; Web survey; Patients; Caregivers; Treatment practices; Treatment experience; Treatment administration; Treatment storage; Treatment burden
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Funding
- Novo Nordisk Inc.
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Patients treated with recombinant human growth hormone (rhGH) for growth hormone disorders follow a challenging treatment schedule. This study assessed patient and caregiver experiences with rhGH therapy treatment regimens. Patients 13 years or older with growth hormone deficiency and caregivers completed Web-based surveys. A total of 61 patients and 239 caregivers participated. Storage of rhGH was considered burdensome by more than a third. More than 51% considered storage somewhat more to much more of a burden relative to the burden while not traveling. Away from home or traveling was the most frequently endorsed reason for missing a dose. rhGH treatment while traveling is challenging because of rhGH storage burden. (C) 2013 Elsevier Inc. All rights reserved.
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