Journal
PHYSICAL & OCCUPATIONAL THERAPY IN PEDIATRICS
Volume 29, Issue 4, Pages 345-361Publisher
TAYLOR & FRANCIS INC
DOI: 10.3109/01942630903245994
Keywords
Transition; disability; qualitative; patient perspectives
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Funding
- Canadian Institutes for Health Research (CIHR)
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Introduction: The transition to adulthood is extremely difficult for individuals with disabilities. We sought to explore the specific issue of transition to adult-oriented health care in a Canadian context. Methods: We conducted semi-structured individual interviews with 15 youth and 15 adults with cerebral palsy, spina bifida, and acquired brain injuries of childhood, and their parents (n = 30). Respondents discussed their health care services, their experience with clinical transition, and contributing factors. We analyzed the transcripts using qualitative methods. Results: All participants identified challenges in transition, including: lack of access to health care; lack of professionals' knowledge; lack of information and uncertainty regarding the transition process. Two solutions were identified: early provision of detailed information and more extensive support throughout the clinical transition process. Discussion: The challenges of clinical transition were universal. More extensive information and support is needed during transition to ensure an efficient move to appropriate adult-oriented health care.
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