Journal
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
Volume 30, Issue 1, Pages 36-44Publisher
ELSEVIER SCIENCE INC
DOI: 10.1016/j.pedn.2014.10.019
Keywords
Community-based; Health disparities; Healthy lifestyles; Measurement; Transition-aged youth
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Funding
- University of Utah Research Foundation, Utah Faculty Seed Grant
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Measuring health for youth with intellectual disabilities (ID) is important for tracking progress toward national health goals. Measures of biophysical and fitness indicators are important but difficult to obtain in youth with ID, particularly in community settings. This paper describes obstacles encountered and strategies used to measure outcomes in a community-based study. Proposed best practices include adaptations in procedures to maximize comprehension; preparation of the environment to provide privacy and predictability; and appropriately sized equipment to obtain accurate readings. Reliable and valid measures, specific to youth with ID, would improve promote research inclusion and reduce health disparities for this population. (c) 2015 Elsevier Inc. All rights reserved.
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