Journal
QUALITY OF LIFE RESEARCH
Volume 21, Issue 3, Pages 453-463Publisher
SPRINGER
DOI: 10.1007/s11136-011-9995-3
Keywords
Concept mapping; Outcomes; Parkinson's disease; Qualitative; Quantitative
Categories
Funding
- Swedish Research Council
- Swedish Parkinson Academy
- Faculty of Medicine at Lund University, Lund, Sweden
- Strategic Research Area MultiPark at Lund University
- Swedish Council for Working Life and Social Research within the context of the Centre for Ageing and Supportive Environments (CASE), Lund University, Sweden
Ask authors/readers for more resources
Purpose To identify and develop a conceptual map of prioritized areas and to determine their relative importance for outcome measurement in clinical Parkinson's disease (PD) trials, from the perspectives of health care professionals and people with PD. Method We used concept mapping, a qualitative/quantitative method consisting of three steps: item generation through focus groups (n = 27; 12 people with PD, 12 health care professionals, 3 researchers), item sorting and rating (n = 38; 19 people with PD, 19 health care professionals), and data analysis (multidimensional scaling, cluster analysis). Results Ninety-nine items and eight clusters were generated. Clusters representing Participation; Mobility and motor functioning; Cognitive and executive functioning; and Emotions were the most homogenous. Statements within clusters representing Energy and abilities; Autonomic dysfunctions; Sensory, speech and swallowing problems; and Neuropsychiatric symptoms also related to statements outside their respective clusters. Clusters rated most important were Participation and Mobility and motor functioning, and the highest rated items were quality of life, walking ability, and sleeping problems. Conclusion By the use of concept mapping, a multi-perspective conceptual map of prioritized aspects for the outcome measurement in PD was defined. These findings provide an initial conceptual basis toward improved outcome measurement priorities in clinical PD trials.
Authors
I am an author on this paper
Click your name to claim this paper and add it to your profile.
Reviews
Recommended
No Data Available