4.6 Article

Challenges in recruiting South Asians into prevention trials: Health professional and community recruiters' perceptions on the PODOSA trial

Journal

PUBLIC HEALTH
Volume 125, Issue 4, Pages 201-209

Publisher

W B SAUNDERS CO LTD
DOI: 10.1016/j.puhe.2011.01.013

Keywords

Ethnic minority groups; Recruitment; Trials; Preventive interventions

Funding

  1. MSc research fund
  2. National Prevention Research Initiative [G0501310]
  3. World Cancer Research Fund
  4. NHS Lothian
  5. NHS Greater Glasgow AMP
  6. AMP
  7. Clyde R&D, Chief Scientist Office, NHS Health Scotland and NHS National Services Scotland
  8. British Heart Foundation
  9. Cancer Research UK
  10. Department of Health
  11. Diabetes UK
  12. Economic and Social Research Council
  13. Medical Research Council
  14. Research and Development Office for the Northern Ireland Health and Social Services
  15. Chief Scientist Office
  16. Scottish Executive Health Department
  17. the Welsh Assembly Government
  18. MRC [G0501310] Funding Source: UKRI
  19. Medical Research Council [G0501310] Funding Source: researchfish

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Background: Recruitment of ethnic minority groups into trials is important. This was studied from the recruiters' perspective in the Prevention of Diabetes and Obesity in South Asians (PODOSA) trial. Methods: Semi-quantitative questionnaire survey of all 22 health professionals and 27 community workers involved in Edinburgh and Glasgow. Numbers and proportions were tabulated, while free-text responses were grouped into themes. Results: The response rate was 40/49 (82%). In the closed questions, family responsibilities, prior general practitioner screening and low interest were the main factors reported by recruiters as hindering referrals (each 28%), followed by fear of needle pricks and finding out their diabetes status (each 23%). The importance of the prevention of diabetes (60%), explaining the trial in a South Asian language (46%), verbal dialogue (43%) and the recruiter's personal relationship with the recruitee (40%) favoured referrals. Health professionals' perceived strength was their knowledge of diabetes (66%), and community workers' strength was explaining the trial in South Asian languages (65%). Strategies to improve recruitment included stronger partnership between researchers and community organizations. The open-ended response identified seven main themes: (1) shortage of recruiters' and recruitees' time; (2) poor understanding of the trial by recruitees; (3) lack of knowledge about the disease among recruitees; (4) lack of motivation and interest among recruitees; (5) delay in receiving appointments from the PODOSA team; (6) mistrust of research; and (7) narrow entry criteria. Conclusion: These insights into recruiters' perspectives should help trialists improve participation by ethnic minority populations. (C) 2011 The Royal Society for Public Health. Published by Elsevier Ltd. All rights reserved.

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