Do advanced cancer patients in Denmark receive the help they need? A nationally representative survey of the need related to 12 frequent symptoms/problems

Objectives The aim of the study was to investigate the adequacy of help delivered by the healthcare system for 12 symptoms/problems in a national, randomly selected sample of advanced cancer patients in Denmark. Methods Advanced cancer patients (n=1630) from 54 hospital departments across Denmark received the 3-Levels-of-Needs Questionnaire (3LNQ). The 3LNQ measures problem burden', the degree to which a symptom or problem is perceived as a problem, and felt need', whether the patient receives adequate help. Prevalences were calculated for problems' (at least a little' of a problem), moderate/severe problems' (at least quite a bit' of a problem) and felt need' (inadequate help or no help despite wanting it). Results In total, 977 (60%) patients participated. The most frequent problems' were fatigue (73%; moderate/severe' 36%) and limitations doing physical activities (65%; moderate/severe' 36%). For the 12 symptoms/problems assessed the prevalence of felt need' was 11-35%. Of the patients who had received help, 34-74% viewed the help as inadequate. Of those who had not received help, 48-78% wished for help. Conclusion Advanced cancer patients are not receiving the help they need. Large proportions of patients were burdened by symptoms/problems. Of those who had received help, many viewed it as inadequate. Better symptom/problem identification and management is warranted for advanced cancer patients. Copyright (c) 2012 John Wiley & Sons, Ltd.