4.2 Article

The contractual genome: how direct-to-consumer genomic services may help patients take ownership of their DNA

Journal

PERSONALIZED MEDICINE
Volume 5, Issue 4, Pages 399-404

Publisher

FUTURE MEDICINE LTD
DOI: 10.2217/17410541.5.4.399

Keywords

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Funding

  1. NHGRI NIH HHS [P41 HG003083, P41 HG002691, R01 HG003042] Funding Source: Medline
  2. NIEHS NIH HHS [R01 ES011174] Funding Source: Medline

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The sequencing and genotyping of personal genomes by commercial services outside traditional clinical settings may help to shape the expectations of research subjects and patients regarding control of and responsibility for the information contained in their DNA. A greater sense of individual ownership of personal genomic information could replace overly complex and paternalistic institutional proxies for the protection of personal genotype and sequence data, and also could encourage research participants and patients to become better educated regarding genetic contributors to disease.

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