Journal
PALLIATIVE MEDICINE
Volume 25, Issue 3, Pages 262-265Publisher
SAGE PUBLICATIONS LTD
DOI: 10.1177/0269216310389224
Keywords
Amyotrophic lateral sclerosis; invasive ventilation; palliative care; sedation; withdrawal of life support
Ask authors/readers for more resources
Long-term home-based invasive ventilation in patients with motor neurone disease / amyotrophic lateral sclerosis (MND/ALS) remains rare in the UK. We describe a case of an MND/ALS patient who was treated with long-term invasive ventilation at home but subsequently requested its withdrawal despite a seemingly stable period of his illness. We also discuss the impact of the delivery of this treatment and its withdrawal on his carers, primary healthcare team, community trust managers and specialist palliative care team.
Authors
I am an author on this paper
Click your name to claim this paper and add it to your profile.
Reviews
Recommended
No Data Available