4.4 Article

Engaging with children in research: Theoretical and practical implications of negotiating informed consent/assent

Journal

NURSING ETHICS
Volume 18, Issue 6, Pages 781-801

Publisher

SAGE PUBLICATIONS LTD
DOI: 10.1177/0969733011401122

Keywords

assent; children; consent; ethics; parents; research

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At the outset of an ethnographic inquiry, we navigated national and international resources to search for theoretical and practical guidance on obtaining parents and children's informed consent/assent. While much theoretical guidance debating ethical issues to children's participation in research was found, a paucity of published papers offering practical guidance on assent processes and/or visual representations of child assent forms and information sheets was discovered. The purpose of this article is to describe our experiences, both theoretically and practically, of negotiating the process of obtaining informed consent and assent with parents and children for a non-therapeutic qualitative research study. We hope this article instigates a platform for others to explicate their experience and contributes to the construction of a coherent body of knowledge which will clearly delineate important elements that must be considered when negotiating children's agreement to participate in research.

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